The waiting seems endless which must be why everyone googles!

1 minute read time.

2nd October 2015. My best friend's 29th birthday. Instead of celebrating it with her, I was sat in the ENT room along with my partner and mum being told I had high-grade non-hodgkin's lymphoma. The exact type unknown; apparently there are over 120 different varieties! The biopsy has now been sent off to a specialist unit and who knows when we will hear more. 

Even though I had prepared myself for this news (yes, I did the dreaded googling), the diagnosis still came as a shock given the ENT doctor originally told me he thought it was hodgkin's as opposed to non-hodgkin's. There is a lesson to be learnt there about reading up on stuff before you have definitive answers. The diagnosis has changed my outlook given I thought I had the 'better' of the two types and I now have to alter my mindset again. No more googling for me.

The waiting around is the worst part and partially the reason I have decided to start this blog. It is definitely not something I would have ever considered before. I have been living a fast-paced, career driven life style and that has suddenly come to an abrupt halt. I miss my colleagues, my teaching and even the complaining about my marking. What I would give to be drowning in exercise books and emails right now! The days already seem endless and I have only been signed off for two weeks thus far. I know I need to find myself a new hobby because at the moment I feel useless and at standstill. How do people not work and what do they do with their days? I guess I will find out aboard this rollercoaster ride that I am about to go on. That seems a fitting metaphor, if a little clichéd, given that I despise rollercoasters and they give me really bad motion sickness.

Anonymous
  • FormerMember
    FormerMember

    Hi,

    The waiting game is just the worse, I am someone who just has to know the answers now. I am not patient. So I google. So I totally understand where you are coming from.

    Sorry you find yourself here. I can say that although I didn't work before my diagnosis I was a very busy stay at home mum to four young children. It is really hard to accept and work with the sudden stop in the tracks that a cancer diagnosis causes. My husband now does the majority of the childcare and housework as I am too tired. I spend hours in bed recuperating after chemo.

    I started a new degree course and it fills my time, gives me something to do when I am forced to sit around and it provides a distraction.

    Good luck with the treatment and new hobby.

    xxx

  • FormerMember
    FormerMember

    Oh dont i just agree with you,  I am terminal but have a scan every 3 months,  result tomorrow it tells me how fast those rotten cancer cells progressing.   Cynthia

  • FormerMember
    FormerMember

    Cynthia, I'm really sorry to hear that. I know that really doesn't seem much from a stranger but it seems to be what everyone says, right?What have you got if you don't mind me asking ans have you had second opinions etc.?

    Try to make the most of life and do things you have always wanted to if and when you feel up to it! I signed up to a free creative writing course witht the OU today. If you fancing joining me...

  • FormerMember
    FormerMember

    I think this depends very much where in the UK you are. I had my mammogram on the 26th of june 2014 and had my first appointment when they took biopsies on 2nd on July and was diagnosed on the 9th of july and had my op 4th of August! I am glad I am in Scotland. I only wish that everyone in the UK had the same cancer care we have up here in Scotland. Take care and I hope you all feel better soon!