Second appointment

1 minute read time.

After my first appointment I told my children. I didn't want them to hear me discussing my diagnosis in hushed tones with other people and felt I owed them the truth at the earliest possible stage.

When my 13 year old came home from school I told her the news. I said I had been to the hospital and that i had breast cancer, that it was very small and treatable and that although it would be a tough six months, we would get through and I would be ok. She asked me if I would lose my hair and when I said yes she burst into tears. I pulled her into my lap and held her as she cried. After a while, as I reassured her, she calmed down, and then she said 'what's for tea?'. My son, who is 8, was more upset that we would not be going on the summer holiday we had booked.

At my second appointment, I was told that the two latest biopsies were both negative, the calcifications were benign. But my relief was short lived,  they had looked again at the invasive cancer and decided it was mainly lobular 'which can occur simultaneously in both breasts and can be hard to detect on a mammogram'. I needed an MRI scan to check the right breast and to check how big the lesion on the left side was. 

More waiting, first for an appointment to come through and then for the MRI itself. At the end of the following week, I went for the MRI scan. Then another week to wait for the results. 

This is so hard. Trying to stay positive for the children but inside worrying like crazy, going to the furthest reaches of the darkest places. 

Anonymous
  • Hello Duffus,

    Yes it is really, really hard, I know. But all the stats are on your side, and you have done the right thing to tell your kids. I told mine (slightly older than yours) that Dad "is going to get very sick before he gets better".

    I have done my treatment, waiting for scan on Monday, then waiting for results no doubt ....

    Not easy, as you say, to stop the mind from thinking dark thoughts. But like I say the probability is that those dark thoughts are nothing more than just that - dark thoughts...

    Stay strong!

  • FormerMember
    FormerMember

    Oh hun, I totally understand how heartbreaking that talk is.

    However, what you must cling to is the fact that it is treatable, having said that it does not stop the mind from worrying.

    The waiting game for scans and results is very hard, I am currently awaiting the results of a scan to see whether my cancer has responded to my chemotherapy course. We also had to cancel our holiday this year so I could have the treatment I needed to prolong my life.

    When you are well you will be able to plan a fantastic holiday I am sure, one where you will truly relish every second ;)

    All the very best for the scan and results

    xxx

  • FormerMember
    FormerMember

    Hello Duffus

    I have invasive lobular cancer too and completely understand your stress with all the testing. It's a sod for being difficult to define. Mine needed many ultrasounds, biopsies, mammograms, core biopsies and MRI and took over two months before they had a good idea of what they needed to take out. Hopefully yours won't but know that the more confident they are, the better it can be dealt with. The waiting drove me bonkers too but out will get there.

    Every best wish x