Plets start with the all important good news, I received my PET scan results and "complete metabolic response" no signs of Hodgkin's. So what's happened since last time.
Well went for day 8 and things did not go completely smooth my blood results were back and hemoglobin was 80 on the edge. So they wanted to take more to see if a blood transfusion would be needed. Well cannula went and in and I could tell I was having a moment tried to put the chair back but it was to close to the wall. Next thing lots of nurses connecting me for 02 stats, putting oxygen mask on me, pulled the chair out so I could lay right back. The place was hot and stuffy so my breathing and lack of blood did not get oxygen to my brain. Fun times.
The blood test is back and hemoglobin is 74 so booked in for blood transfusion on the Monday
Have to see specialist on day 9 not very good as I am truly struggling every time I stand up I feel dizzy, blurred vision a lot of the time it is so unpleasant. Well it's a another new specialist and he's not to upto date on my case and is not 100% keen on starting cycle 5 before scan results. However I am keen for no delays so we agree to continue.
My general struggles continue over the weekend and hospital on Monday for the blood transfusion. I ask for a blood test so I have it for chemo on Wednesday. Then 3 units of blood takes about 6 hours and just wow, what I assumed was just chemo affects was largely down to the fact that the chemo had ruined my blood count. Never realised quite how bad I had been feeling until understanding the impact that a low hemoglobin count has. It had reached 68. Maybe being a vampire makes some sense.
Tuesday PET scan, all smooth with this. Wednesday start cycle 5 and turns out low platelets on last blood test so time for another before I can start today's chemo and it all comes back good with my hemoglobin back up to 97.
People begin to wonder when results will arrive, I play it down as specialist is another week away and although I may get them before, do not want everyone having an expectation.
Thursday chemo all good, nic has come today but no results. Friday the Macmillan nurse invites me in for my chemo and gets to deliver the news, nic had come, I couldn't really react (not even now). still I knew it was real as was due to start chemo and the drug expired that morning. Once again I had received day 2 on day 3 and so my chemo was no good... Just found the whole situation hilarious. Meant that more chemo needed to be made and my 2pm session only started at 4.30 was still home by 6.
Cycle 5 to complete and cycle 6 final chemo on 9/12 with all pills done 15/12. Then Christmas, and wedding in Jan. Hopefully no delays and that my bloods wil play ball.
Thanks everyone for reading so far. Just keep ticking the boxes.
