So, after a good weekend watching rugby (seeing Japan pull off the unthinkable) and generally doing as much as possible, reached Monday. Nic taken day off so I had support for session 1, ring chemo unit to find out what time I can come in. Due to late notice of starting BEACOPP I could not get scheduled on the normal chemo suite, so I was being treated as an "in-patient" meaning I got a bed on the ward.
The Dr was completing rounds on the ward so not sure if/when a bed would be available. Call back a couple of hours later, hate chasing as I know how busy the staff are, still need to get a plan so I can mentally prepare. The unknown of a new regime definitely a concern. Come in at 4, which we do the usual nightmare parking to contend with.
Turn up and room is not available, further 3 hours before being allowed to get the room. Only to be told that I have to stay each night (not what I was originally told) and won't start tonight I'm only here to get my bed. The have to wait for a line to be put in at 11.30.
Take 2 get up and turns out they missed me from breakfast but the cleaner (legend) is kind enough to arrange a bowl of cornflakes. Midday before I get the pre pills almost had 32 steroids as they thought they may only have 5 mg tablets. Dad comes to break up my day although on his first attempt his car breaks down, what luck, so he goes home and back again on the bike. 4ish and they come to start chemo but have lost one of the pills, finally start at 5, nic comes after work for company and finish chemo around 8.30.
So far been fine, especially now I got going again but goodness me the communications have not been great, and when you're apprehensive you just want a clear time of when stuff will happen. Hoping the rest of this experience will be smoother.
Quote of day, one nurse does stats and within 60 seconds another comes to do the same, cleaner says "they're like buses none for hours and then 2 turn up" :)
