In Feb.2014 I became not very well with stomach problems, No matter what I did nothing helped. After visits to my doctor and several attempts with tablets etc. the situation became more serious. I went to see a specialist who advised he would do some tests. i.e. endoscopy etc. However before any tests could be done I fell very ill and fortunately I was in hospital when this happened. I cannot explain how ill I was but the specialist advised my husband and family that I could have died. Fortunately after five days he felt he knew what it was and began treatment with octroetide injections which controlled my very severe symptoms. I was then referred to another specialist who specialised in this field and he found a neuro endocrine tumour on my upper bowel. He operated in the June and took some of my liver, my gall bladder and 2cm of bowel and reconnected after removing the tumour. However eventually these things appeared on my liver and I had radio frequency ablation * I think that it what it was called" and this appeared to help. I had a further operation in Nov. 2016 to find a blockage that I had which had involved being admitted to A&E several times and also resulted in a huge hernia appearing. I was very lucky as the blockage was found and the hernia repaired up to 85%. I now have monthly injections to control the "things" on liver which appear to help. I am however very frightened as no-one seems to be able to tell me what eventually will happen. It all feels like how long is a piece of string. I am in my seventies and I suppose reasonably fit in other ways although I do suffer from hot flushes and frequent visits to the bathroom. I also occasionally have a great deal of pain but fortunately this is not often and I can control it. I just want to know what to expect. I suppose I am lucky because they found the primary source but sometimes I feel when and how it will all end. My moods are extreme to say the least and I don't know how to control this. HELP!
