My lovely 76 year old Mum has been diagnosed with 'Advanced malignant butterfly glioma' on 10th August 2017. Her only symptoms were tiredness, a little confusion and short term memory loss. Mum was originally diagnosed with low sodium and treated with sodium drips. After 2 weeks MRI scan revealed tumour in brain. We were told this could not be operated on because of Mums age and position of tumour (both lobes of brain) grade 4. This has devastated our family as Mum was otherwise fit and well and very active (we've had 2 Spanish holidays this year). After initially being treated with high dose of steroids 16mg per day. We have now seen Specialist Dr Dixit at Hull Castle Hill and we have just started chemotherapy in tablet form, Temozolomide 255mg per day. This is the 4th day of pills and so far the only side effect is muscle weakness/extreme tiredness. After 5 days of tablets, we then rest for 3 weeks and return to Hull for checks on the 4th week.
We would like to share our story in the hope that it will help other people. Also we would be very grateful for any advise/experiences you may be able to share.
