Ok so I'm now 7 months into treatment for a wild type metastatic GIST and it has been a long 7 months.
How it started: In July 2016 I had a MRI scan on my bowels and a colonoscopy because I had been having stomach cramps for around 3 years. Shortly after I went to see the gastro doctor who told me all was fine. Few! That's a relief! Or so I thought! Happy days of discovering there were no nasties in my bowels were short lived wehn he proceeded to tell me that the MRI had caught a small section of my liver and he wasn't happy with what he was seeing. So off I went and waited for an appointment for another MRI. The appointment came and again I went to see the gastro docto, who then showed me the image of my liver- 8 small tumour. "Don't worry" he said, "we'll get a liver biopsy done and it will probably all be fine." The liver biopsy happened and again I went back to the gastro docto. This time he wasn't so positive. He proceeded to tell me that I had a rare cancer (I can't remember the name). Later that week I had a camera down my throat to check there weren't any nasties in my stomach and low and behold they found a small tumour in my stomach. Now it was close to Christmas! I was sent for a PEC scan to check that there were no more nasties in my body. At last some good news! Everywhere else was fine. On the 22nd of December I finally had a full diagnosis Wild Type GIST with metas secondaries in my liver. Then the next blow came- the words that body wants to hear! NO CURE. Wow! Now here I am 7 months late. Every day I get up have breakfast and take my daily tablet Gleevec. I have monthly blood test to monitor my liver, kidney and white blood count and to date have had 3 CT scans to check for changes to the tumours. So far so good! Now just to wait for my appointment next week to find out if there have been any change.
