Has anyone who is a patient on the watch & wait path been discharged / or told they will be discharged from hospital back to GP care unless / until their medical situation changes?. This is what I have been told is on the horizon. My experience in getting to diagnosis point was full of mental torment, and frankly the concept of being 'dropped out of the system' fills me with dread.
To lose the ability for a telephone consultation with hospital cancer care nurse who has direct access to consultant, and with access to the consultant's diary if an appointment should be necessary, compared with the problems with getting to see a GP, starting with negotiating the telephone switchboard / online booking system, then actually getting the appointment (telephone or in person) followed by delays with a referral - the whole cycle would take weeks from start to finish, it's an unwelcome path forwards.
So does anyone know better?
