My First Hello

Less than one minute read time.

Hello Readlings,

I am Lydia and welcome to my blog. I am the fresh young age of 24 and in November 2016 I was told I had a rare uterine tumour. There are only 10 cases of a uterine inflammatory myofibroblastoma in the literature, my consultant referred to it as ‘vanishingly rare’, rather poetic I think. So here I am, the 11th person to have this diagnosis.

Through my journey, I have come across many challenges, the majority of them I share with many other young adults with cancer, and yet they are nearly all under discussed.

I am starting this blog to write openly about my experiences and start a frank dialogue about the troubles young adults face going through cancer, because it’s an important dialogue to open. I am also a Manchester Cancer Champion for Trekstock, a charity providing support for adults in their 20s, and 30s going through cancer.

If just one person reads this blog and feels not alone as a young adult with cancer, feels part of a community, connects with anything I say, or is empowered to speak out about the struggles and needs they share with me, then I have done the job I set out to.

Enjoy!

Anonymous
  • FormerMember
    FormerMember

    Hi Lydia!! My name is Hollyann, I am 26 and I'm so glad I came across you! Well, you know, obviously it would have been nicer if we both didnt have cancer but still!

    I have kidney cancer, I was diagnosed at 24, had little leftie out and then a few months later I was told it had come back- ugh! So i started on a clinical trial, then that stopped working its magic so now I'm on chemo. I have a few tumours that are quite stubborn and refuse to let me just carry on and live my life!

    I read your second post but wanted to comment on here and can I just say how glad I am to hear you say what I feel! I've not come across many our age and it's bloody hard! All my friends have careers, weddings going on, kids and I'm here like ah yes, I'll just write down on the calendar when my next scan should be..

    I am so BORED of this cancer crap. So, it's really nice to have come across someone who feels like they have had to drop everything for it. Also, I too criticise myself so much but am slowly learning that its okay to have a day on the couch with netflix or, you know, to finish that galaxy bar off (I'm not buying into the idea of sugar causing cancer- they have to give us some joy here!!).

    Anyway, sorry for rambling! But I would love to chat more if you wanted to, sorry but I'm just so happy to have found someone in a similiar boat albeit different cancers!

    I hope you're doing well today and if not I hope you're chilling!!

    Hollyann xxxxx