some info please.

Less than one minute read time.

FormerMember

28 Mar 2010

Good afternoon everyone, I would just like a bit of info if anyone can help.

When I was originally diagnosed with breast cancer in 2007, I started 6 courses of chemo from June til Sept. then had lumpectomy and lymph glands removed Oct. Then 5 wks radiotheray finishing just before xmas. Was seen and told good margin of clear tissue and only 4 lymph nodes had c cells. so far so good given Tamoxifen and given appt once year for check ups. All ok until last year when had really bad pain in back and legs, treated for slip disc fof 6 mths THEN had MRI which showed secondary on my sacrum. Now to the question is there anyone who had an MRI or CT scan as part of original treatment once it was known to be in lymph nodes .

Sorry to be a bit long-winded just wondered if I was the exception or the norm not to have been given either when it was found to have gone to lymph glands.

Hoping someone can help.

Thanks to all.

Love Vee. xxx

sue G over 15 years ago

Hi Vee

When I was diagnosed with lobular breast I had a SNB which showed cancer cells in the sample taken.

I was then given a CT and bone scan before surgery to make sure they had the full picture. The scans were clear I am glad to say so I had a mastectomy and removal of axillary lymph nodes in April 08 followed by chemo and RT.

Am having a reconstruction on 31st March and I was given a full body CT scan in February to make sure all was well. Had the all clear so I have surgery on Wednesday all being well.

It seems different health authorities have different practices. I live in Worcester but having my recon in Birmingham.

Hope this helps. I was on 12 month referrals after treatment and am taking Arimidex now.

Best Wishes

Sue xxxxx
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FormerMember over 15 years ago

Hi Vee, you know my history, i did ask the onc at the time if i would have any scans and he said it would be very difficult to see at that time anyway, but if I had ANY aches or pains to let them know immediately and I would be scanned.

Hope you're still doing ok,

luv Jenny xx
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KateG over 15 years ago

Hi Vee,

I am 2 years post-treatment and am only now having bone and MRI scans (suspicion of mets). Before treatment I only had mammograms, fine needle aspirations, and core biopsy. I also had one of those scans they give to pregnant women (can't remember what they are called) on my breasts. Hope this helps.

Best wishes,

KateG
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FormerMember over 15 years ago

Hi Vee,

I was diagnosed with secondaries in my liver at the start. My liver was investigated first and that included a ct scan.

Since then I've had progression in my bones. I haven't had any bone scans, but they did do an MRI to investigate persitant sciatic pain, which doesn't appear to be related to my bone mets.

Bad Fairy x
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FormerMember over 15 years ago

hi vee,

although mine were not in lymph glands, only had rads.... from 1999 until i had problems with my period in 2008, i was only offered mammogramms.... i have 5 large tumours in my liver, a "spot" on my hip, and cancer in my uterus caused by tamoxifen... none of which was picked up in 9 years. i have since had about 20 different scans in the past 2 years.... a bit of closing the gate after the horse has bolted eh ha ha ... my mum on the other hand, was dx with the same type of b.c. 9 months after me (invasive lobular) was given everything and is now totally cancer free even though she had 20 nodes involved.... you might ask why we were treated differently.... i lived in north yorkshire... she lived in belfast.... is it the infamous post code lottery??

who knows... i now have the same doc as my mum and thankfull for it..

good luck with all your treatment

liz xx
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