Hello everyone - I was diagnosed five weeks ago with AML - it was a terrible shock as I had been out cycling and felt a bit faint - when I got back to the house still felt a it off - blood tests and bone marrow came up with AML. I am a very young and fit 57 - or should say I was.
Apparently because of my bizarre chromozomes chemo only had a very slin chance of a cure - 2-4% so I decided not to put myself through hell and then die anyway. They are monitoring me and so far I have been very well - they will keep me topped up with blood and platelets and I am on anti virals anti biotics and anti fungals. Also I have been to see a homeopathic specialist and am on other supplements. He does not say he can cure me but that he can help me. I just have to hope for the best but my prognosis is not good - 6months - a year if I am lucky. Most of the time I am very positive and determined to deny the prognosis but other time I get quite down. I am hoping a support group like this will help - I am sure it will. All the best to all of you.
FormerMember
Hi Val...............welcome to the club that no one wants to be in. On here you will find some amazing people who have been and are still going through the mill. We tend to support eachother and listen to eachother, we know what it is like first hand. I am in remission from Ovarian primary cancer and live with the knowledge it could still get me.
It can be a lonely and frightning time, so on here is the place to be. I wish you well my friend and others will get back to you, we have a whole range of experiences with different types of cancer. Keep blogging....................Love Carol
Hi Carol - thank you so much for your reply! You are right it is the club that none of us ever wanted to be in. Glad to hear you are in remission - you look quite young - I am 57 - female and would put in a photo if I knew how. I am feeling positive today but yesterday I was ready to go to my bed and wait on the end coming - what a roller coaster of emotions we go through. I never was keen on the idea of living too long but I definitely wanted a bit longer than 57. Looking forward to sharing feelings etc with everyone here - sure it will help me feel less isolated - the way I feel just now is that everyone's bone marrow is working except mine's.
I've heard that drinking essiac tea can be quite beneficial to the immune system.
My mum also has AML and is 67 years old. She had 4-5 months in total remission and relapsed in June this year.
She is on chemo tablets to keep the leukaemia at bay which it is doing, but her neutraphils are at zero, so she daren't go out much and mingle with other people for fear of infection.
I admire your sense of humour and the fact that you are just getting on with your life. You are one brave person.
