Arrived at the hospital yesterday morning at 8.30 as requested having talked myself into being positive when we got there they did all the normal questions date of birth height weight all that stuff - then they asked me have you been taking folic acid - no I said, it appeared that according to the records they had I should have been.
I explained that I had two appointments to discuss the type of chemo and the decision at the first appointment I was given a prescription for a vitman B injection and some folic acid but told not to have it dispensed that day but that I should come back the following week as they were looking into other types of chemo at this point the bed was booked for my chemo
The following week I went back and was told that I didn't need the prescription and to attend for my chemo on the 23rd
The nurse then said she would need to get in touch with my doctor or his registrar to confirm exactly what chemo I would be having so that it could be prescribed They tried all morning but didn't get hold of him until about 2.30 when I was advised that I wouldn't need the folic acid with the type of chemo I was having so it could go ahead
In fairness to all the staff on the ward they were really lovely and very apologetic and I understood that they needed to get it right but my now my positivity had totally disolved it also made me realise I need to listen harder and either take notes or have someone with me take them and I now know my chemo is Vinorelbine & Ciisplatin ( so lesson learned )
The flush drips started about 3ish and I was finally finished around 10.30 - 10.45
Got home today about 4 (had to wait for a prescription for tablets to prevent a mouth infection they thought they could see some white spots in my mouth)
Anyway on a good point I feel OK just very tired and slightly achey heres hoping it last for as long as possible.
Oh and can any one explain why at 2.20 in the morning they wake you from a sleep give you the shock of your life and expect your blood pressure to be normal!!!
Thanks for listening lots of love to all.
Val
XXX
