Advanced Liver Secondary: Useful Links

1 minute read time.

Do not read if you do not want to be well informed about 'the end' or last few weeks and days. I am posting these because after loosing my father to a liver secondary (he had acute liver failure right at the end, deteriorated at an remarkably fast rate..all of this owing to a bowel primary found 2 years prior). I now have the reflection after my father's death and I wish I'd been better informed about the end, as I could have provided for him better. I did write a detailed post about my father's final days immediately after being bereaved, it was very candid and detailed and unfortunately offended some people on this site. I hope that people who read this remember that bereavement of such a close person involves heightened emotions and I am also in my final trimester of pregnancy which only adds to this. I don't apologize for  sending that post as I only ever intended to help and improve others lives and NOT upset them. I was very upset to read I'd offended people, but I suppose everyone takes a different approach to cancer and when you're in the midst of it yes the prospect of the end is very scary and many people want to avoid the subject enitrely. I know my father, the patient never discussed the end, or aknowledged it to myself or my mother. Here are some links anyway:

 

http://www.merck.com/mmhe/sec10/ch139/ch139f.html

The following site is American, or a little more international and a s a result the posts a re a little more candid than the Macmillan crowd. I find this very helpful. Perhaps after spending a number of years living in the Sates I've become more direct as many Americans are compared to the 'reserved' British.

http://www.cancerforums.net/post-9555.html

 

http://www.cancerforums.net/forum-10.html

Anonymous
  • FormerMember
    FormerMember

    Dear Jess,

    You have absolutely no reason to apologise for your blog,you were writing down your most inner feelings for us all to read. It must have broken your heart to write down those feelings in could not have been at all easy. If its any consolation to you now. I found your original blog very moving and helpful.

    May your Dad R.I.P.

    My deepest sympathy Sarsfield.xx

  • FormerMember
    FormerMember

    Hi Jess

    I read your original post and it mirrored my own experience when my husband died over a year ago.  Even though he was admitted to hospital on a Thursday, he suffered hugely over the weekend, when it appeared to me that the staff did not realise how ill he was, he died on the Monday.  We didn't see the same doctor once over a three day period, none of them knew his history well enough, had I not been there to give him tiny sips of different juices etc I hate to think how long he would have been left on his own.  His consultant saw him first thing that morning and immediately realised that the end was near - although he thought it would be at least another two or three days, in fact it was four hours - and stopped all the pointless, unnecessary and painful treatments.  What I am trying to say is that I wish I had known more, I wish I had known what signs to look for, because although I was there the whole weekend and I knew something was going very wrong, I believed that as we were in the hospital 'they knew best'.  Had I known then what to expect I would have been more bellligerent in insisting someone took overall responsiblity for the continuity of care.  So well done you for forewarning the people that do wish to be prepared.

    My love goes to you.

    Judi xx

  • FormerMember
    FormerMember

    Dear Jess - Thank you for posting this. I agree with Sarsfield. My younger brother was diagnosed with Hodgkins when he was 14 years of age, and died when he was 18 years in 1974. (He died of over-radiation - There was no Chemo available in those days in Canada). He was an extremely bright intelligent teenager. He wanted to talk to us about the process of dying - but all the family members and doctors refused to discuss  it with him... - telling him that it was just not going to happen. I wish that I had had the courage to investigate this with him. There was so little information available to us in those days but I'm still left with that regret.

    I've joined this site as the carer of my husband who has stage 4 bowel cancer and find that all of you have been so helpful and supportive and are not afraid to be open and sharing. So thank you again, Jess, and best wishes on the birth of your new baby!!!

    Love, Mo

  • FormerMember
    FormerMember

    Thanks guys, I feel a lot better about things after reading your comments - I'm glad people can see where I'm coming from :)

  • FormerMember
    FormerMember

    Jess, please may I express my sympathy to you.

    Your story is helping me right now, my mum has less than 6 weeks due to secondary liver and bone cancer, and me and my sister want to take her home.

    I thank you for your candid information, and will use this in the too few weeks in front of us.

    Take care Lynn