Another Bad Day

1 minute read time.

I just need to have a rant!

I hate it how there's more bad days then good days now... On the bad days it's like, when am I going to have a good day? Tomorrow? Next week? Ever? You just don't know... but on those rare good days, it's like, just waiting for those bad days to come back - probably the next day. You're given that little bit of happiness, and then it's snatched away again.

Yesterday was one of the best days I have had since before I was diagnosed in Jan 2011. Nothing special, but the pain was pretty much non-existant. I wasn't tired. I wasn't feeling depressed. I took my medications without a second thought. I invited friends over for dinner, because I was feeling so good. It was fantastic.

LOLJKS, now it's back to the way it normally is... Everything hurts, I hate my medicine, I'm exhausted (despite my good night sleep) and my constant depressed feeling has returned... *sigh* It's days like these I think back to days like yesterday, and while they were good, it makes today worse.. because it's not like yesterday.

And it's days like these I can't think about anything except for how much this sucks, and how unfair it is. Everyone else is out and about, working, having fun. I'm at home and barely get off the couch. I tried to make my bed this morning - an hour later we have a badly made bed that will need to be pulled apart again before sleeping in it "comfortably"... not that I can get comfortable anyway.

I have an appointment tomorrow to discuss the idea of starting with chemotherapy (or something else) despite the doubts with it, held by the medical staff... I wonder whether this is a set up for disappointment, or a setup for disaster. Or maybe, just maybe, however unlikely, maybe something will go right...

 

Kate

Anonymous
  • FormerMember
    FormerMember

    Oh Kate, there is not a lot to say to that except to give you a huge huge long squeezy hug- you know the type... and what they do.... and sending you love and positive thoughts for many a good day to come.

    Good luck with the treatment options. They would not suggest it if there was no point at all.... Lots of us take those chances and defy those odds and if it gives you more of  the good days... well, might be worth a go... and see if they can sort out your pain relief as that gets you down no end and you don't need to be in pain.  

    Big hug 

    Little My

  • FormerMember
    FormerMember
    Sorry to hear you are having a rough time and there are more bad days than good. I have just finished read a book called Buji and Me by Wendy Kelly. It's about her rescuing a dog from death row and how she learns from the dog. The strong message which comes across is about no matter how rough things get you must live with the moment. No what ifs or speculate about tomorrow or next week live for today. It's a great read xx sunny chair
  • FormerMember
    FormerMember

    Hi Kate,

    Firstly the best of good luck for tomorrow! As LM says, they wouldn't offer it if they didn't think it worthwhile, so good luck and I hope fopr some good news for you.

    Secondly, Here's the biggest huggiest hug to go with everyone else's!

    Love Colin xxx

  • FormerMember
    FormerMember

    Hi Kate

    Sorry that you are having such a rotten time but as LM said, they wouldn't be talking about new treatments if they didn't think it was worthwhile and please do tell them about your pain as this should not be happening.

    Hope tomorrow goes well for you.

    Much love and a massive big squidgy hug,

    Nin xxxxx

  • FormerMember
    FormerMember

    Hi Kate,

    Just want to backup what's already been said. Go for the treatment with an open mind. It wouldn't be offered if there were no positive benefits to outweigh the side effects. Honestly, the MDTeam is there to offer and fight with you against this s****y disease. Hugest of hugs and much love to you and good luck.

    I also really wish that you can get more control over your pain and are able to enjoy those good days more often and that the bad ones stay away. xxxx

    Take care

    Jan xxx