Hellooooo

Hi all Sorry for being a bit quiet on the computer - just busy with kids back at school, sport starting up again and also the massive heat wave Aus has had - was pretty yucky for a while - (though not as bad as Melbourne in duration and bush fires) - but it made you very very lethargic!!! and the office in which I use my computer here at home gets very hot!! So that is my excuse! Kids back at school - had the best holiday down the south coast - Back to work - been dropped a day due to bad financial times - but have managed to pick up some home typing and other bits and pieces on and off so not been too bad - Now to Paul.... We went to see his Professor last Thursday after him having a scan on Monday - as a refresher - Paul had been taken off all chemo since the first week I think it was of December as he was getting very tingly toes and fingers and the professor was very worried that he mite lose sensation completely in his toes and fingers - he told Paul that the dosages of chemo he had been having since June last year were very high and his body needed a break - so no chemo since then and still not - scans showed that the cancers in his liver were still there - and had grown a little bit - so that put us back abit but on saying that we kinda knew that no chemo = no fix - so was no big surprise - just that we didnt want to hear it!! We actually saw the professors regsitrar who was fabulous (unlike some of them we have had to see in the past - fresh out of school so to speak with no "bedside manner". They are now going to put Paul back onto chemo to feed through his port - once a fortnite - they are taking away the Oxcyplatin (spelling wrong I know!) as that was what caused the tingly stuff - so he will now be on Colorectal, Fluorouracil (5FU), Leucovorin and Irinotecan (FOLFIRI) - he will have to go into hospital once a fornite for the day clinic where he will be for about 6 hours with bottle - then bring the bottle home attached for another two days - then go back to get it disconnected. I was wondering if anyone knew or had experienced this combination of chemo? Any loss of hair with this? So that it where we are at - this will go on indefinitely - will of course get scans done again I think every 6 weeks - but the downside to the results from scan is that there are still too many tumours on liver to operate - and Paul is also convinced the cancer in the bowel (primary) is getting worse as he is having problems going to the toilet etc - typical man - nagged and nagged him to take some sort of medication as a laxative but no - wouldnt do that until he was told by the doc - !!! He is looking well though - put on some weight - actually has been wearing swimmers this summer - at the beginning he was in no mood to wear them saying he looked disgusting as he was so skinny but he put on weight and then the swimmers came on so he was in and out of the pool - on saying that our temps have dropped about 20 degrees and the last couple of days has felt very autumn like (though it is still midddle of summer) and it is raining and yucky - though I must say I am loving the cooler temps as it gives me more energy!!! and also the garden is looking green again - Anyway - thats all folks!! If anyone has any info on the above chemo that Paul is about to start would love to hear from you - Take care all - Love and hugs Taniaxxx