Well I guess it is one thing to decide to create a blog but quite another when you start thinking about what to put in it. I guess a little background is the place to start.
I was diagnosed with CML in May 2007. Treatment with Imatinib and Dasatinib has failed, my blood counts fall too low and I can't tolerate enough of the drugs to work on the cancer. The decision was made in Jan of 2009 that I would have a stem cell transplant at Addenbrooke's hospital in Cambridge and the provisional date is May 3rd.
My sister was tested just after I was diagnosed and found to be a donor match however there is a slight logistics complication in that she lives in Australia.
There are lots of things going on at the moment and my mind seems to be in a perpetual state of whirl, I am hoping that putting my thoughts together for this blog will enable me to gain a better perspective. Or alternatively it will provide an anonymous place for me to rant.
Anyway enough for now I will update later with where things are at the moment.
"Life is always full of choices, just not always the ones you want"
FormerMember
Hi Trog,
Being a fellow CML sufferer I can appreciate the obstacles, bumps in the road that some of us will take, and even though you are going for the transplant I still feel you will be ok. We talked about statistics which are produced by formulas from gathered data.
Remember the old saying "LIES - DAM LIES - THEN STATISTICS" there is a lot of doom and gloom but there is also major stories of success that I have read about from people in worst situations that are cured.
For me I think it would be a mini transplant as I'm closing in on the big 50. So if you need a chat during your progress you know where I am, we will support you all the way.
Just wanted to say I hope it goes well. My husband has recently been told he has CML, but we are right at the start and hoping the drugs work. Good luck with stem cell transplant.
I'm thinking of you and I hope the transplant is a success, your in my thoughts and as a sufferer of the codition too it empowers me to know that if I ever need a transplant I will be able to think "Troglodite had one and everythings fine" so I'll be ok.
