Post 515: Lymphoma therapy day 12, done and dusted.
So the feast and famine of constipation and diarrhoea has turned full circle again and I’m left with a big protruding belly and an uncomfortable feeling of fullness, but I can’t stop eating.
It’s not a great evening because I’ve also got a AFib event bothering me and that’s been a rare thing since I was on the new pills, the Digoxin. But of course I’ve stopped taking those pills as I was advised in the beginning from the doctor in the hospital; don’t take them if your heart beat is lower than 60.
Well it’s been under 50 for a couple of weeks, so I’ve stopped them.
Heaven knows what I’ve got to do next but I thought it wise to have a medical drug. Heck from the GP so I got onto Accurx (the new online triage platform) and asked for help.
While I was coming back from a little walk to my pals renovations on the bungalow down the road, I got a call to ask if I could pop in to the GP on Thursday afternoon just before work and have a medical review. Fabulous.
At least I will be able to ask about the digoxin and when to take them or not.
The walk was in the sunshine and a great day to get some fresh air. My heart rate was between 52 and 73 on the 1.1mile round trip there and back and shows how slow my heart beat is normally.
As I’m only on 1.25mgs of Bisoprolol I can’t go any lower for my beta blockers so I don’t know what my GP can suggest without asking the cardio experts. The cardiologists that do not want anything to do with me; just because I’ve got cancer. Bloody cheek, bloody nightmare.
So tonight I’ll just wait for the heart to calm down from the AFib it’s in. It’s only been five hours so far so I’ve got to wait a long time till sinus rhythm is retuned.
My back was a little better today and neck was good. Perhaps it was the lay-in I had today. That’s a good thing because there’s nothing else good happening on my body.
Mind you, the infusion hasn’t caused any chaos which is good, I don’t know that it was going to be NBC but just in case I only took a race.
I extend the raffle to another week. So that evenings can filled with the scurrying of paper and the fixing of dates.
But onto other more important things there’s the first of twelve treatments for her lymphoma today and I wish them so much luck with it.
She, my Daughter-in-law, has the bad luck to have lymphoma but the good luck to have found it before her 30th birthday and to have a loving supportive family (including us) who are willing her on for her 15 minutes a day and hope that’s enough to see it off.
It’s non-Hodgkins lymphoma and the likely outcome of this treatment is so very successful we are relaxed about her situation. Relaxed but keenly interested to have her results in a few months that we hope are going to be good.
Associated to the lymphoma and my prostate cancer will be my tattoo on Friday (2 more sleeps) and I can’t wait.
In fact I’m interested in getting more tattoos to adorn my precious body.
The love of my life is probably the next tattoo which might be a twinned one with my Darling.
We have a lovely day of Disney and it’s more than likely that we could have a copy of a piece of artwork we already have on the wall upstairs. It’s an image of Micky and Mini back to back with a lovely cuddly look about themselves.
We shall see if our artist friend can separate them and offer up images that would help me show how much I love her, my wife not the artist, of course.
Perhaps I’ll have other Disney images converted into tattoos, such is the importance of Disney to us and the kids.
Anyway, enough of that.
The hopping off of the bus is treating me well and I’m able to enjoy my life for all I do though it’s not much.
I don’t feel at all like the prognosis is right and as I’m at the end of that calculation as good or bad as it is, I’m taking it day by day and month by month whilst I work (a little) and play a little and enjoy the sun while it shines on me and you.
I’m feeling bright and hopeful that it stays that way for a while now.
I hope the same for you too.
Sleep well and take care all that are on or off the bus.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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