Post 480: Self Advocacy yet again.
I asked a simple question and lo and behold I’m not only right to ask the question but now there’s another wait because of it.
Will things ever be resolved on my claim?
Another bad sleeping night was recorded on my watch. Yes I know I shouldn’t turn it off, but I like the days when it’s telling me I slept well, which isn’t often I can tell you.
So all day today I’ll be sleepy and find it hard to concentrate…
As you know last week I had an envelope of data about me handed to me over the counter at the drs surgery, this was great news because it was the information about me which the insurance company need to assess whether or not I’ve a realistic claim to end our mortgage early.
The envelope was open (not sealed) and I poked my head inside the pack to check what it was they were asked and what they answered.
To be honest the answers were nothing to worry about, they were just facts about my cancer. It was all in order and my Darling had a look too, as you do.
The thing was, I was not entirely sure that I should have been allowed to look at it, the answers.
Surely this should have been between the Doctor and the insurer checking the claim.
So me being me, I decided to ask for advice from the insurer as to whether I should send the lot in the post, or email it as a pdf file?
I received the answer to that today.
“Thank you for your assistance. However, the report must be sent to us directly by the GP surgery. If you send the report to us yourself, we would need to contact the surgery to verify it before we could use it, as it was not received directly from them.”
As you can read for yourself I will now have to return this report to the doctors surgery for a proper closure and to be sent at their leisure to the insurers.
So after three and a half months of trying to get a hasty reply about whether I can claim on my insurance for an early termination due to my incurable cancer, I still don’t know…
WHY ME!
And while I’m on the subject…
Do you get upset by little things or little wordy things that are not really used properly.
I think the problem is all with me, however the phrase I use to describe my stage four cancer is incurable.
But, in the press and social media Sir Chris Hoy’s cancer situation always described as terminal.
It’s not for me to be so divisive but what the bejesus is anyone using the terminal word for in this case? It’s incurable not terminal.
Is it that I’ve a thing against Sir Chris? I don’t think so. He’s an amazing guy just getting on with life with an incurable cancer.
Why am I even mentioning it. What’s the matter with me?
Incurable, terminal, who cares?
Well obviously I do.
I’ll stick with incurable thank you. I’ll try not to look at Sir Chris’s socials. I should wind my neck in.
It’s just the way I’m wired.
But onto more mundane things, Mr Vicious is singing outside my bedroom window, which means it’s time for breakfast.
I’ll get to him in a minute but first mention my haribo curse.
I’ve been steadily eating my way through the 140g gold bear packs and the star mix bags and the bigger 400g bags too, but I’m struggling to wean myself off of them.
The steroids have gone now and haven’t been much of a problem at all but as for the little gummy sweets, well they are so addictive.
Whenever I go into a supermarket I’m buying two or three bags and because they’re on offer at the moment, I cant stop myself.
It’s not like they’re drugs or something worse but they’re not that good for me, as my dentist will tell me soon. Oh and that reminds me…
Have you had an Zoledronic infusion before?
I’ve been advised that I should have an infusion at the local hospital, soon after the bone-scan and definitely not before (or it will cloud the scan results).
But I received a call from the appointment secretary (whilst I should have been working) who asked me if I had the dentists checkup already. I replied no but it’s in September.
She said that I needed to get my dentist to write an email to her, the appointments secretary directly, to state that I’m fit enough (in my mouth) for the infusion.
Well I know a little about this injection and the ruckus it can cause with side effects like osteonecrosis and atrial fibrillations (which I already have in spades).
So I’m wondering if I should ask a few more questions about its usefulness in me right now.
I don’t need any more problems than I already have.
Oh well, something else for me to worry about.
Take care
