Post 207: Self advocacy or coincidence
When it all is said and done
Some are lost and some are won
(Remembrance Day thoughts)
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You have to wonder sometimes if you’re being too pushy — but then again, what harm could a sincere message really be?
Overnight, at some point or other, I realised I needed to remind my oncologist of a few things. I then forgot something else and ended up sending two messages — oops!
One was about not being able to see this week’s blood test results, the other about my WBMRI (whole body MRI) scan which is still not booked in.
By the end of the day, both issues were sorted.
The email link to Patient Knows Best was in my inbox before the two minutes’ silence at eleven, then again later, during my now-essential afternoon nap, I was rung by the MRI suite to book the WBMRI — for Thursday, straight after the big powwow.
Both fixes were either coincidence, or maybe, just maybe, the emails hit their targets.
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My aches and pains continue all over the place, but I know there’s little I can do. My occasional shot of oramorph does the job, but I know that’s not the best answer.
Mr Vicious’ cat food arrived in the nick of time yesterday, which meant smiles all around — the biggest from the cat. After he was fed (me too), I popped outside to deal with more wild garlic. It’s a war of attrition I’m going to eventually lose, but I’ll give it a go.
My Darling has never often donned the gloves and kneeler so it a lonely job I’ve taken on — the only time she’s picked out weeds was when special visitors were coming, then there was a bit of action. But to be honest, we’re rarely in the garden. Neither of us are sun worshippers, so we don’t spend much time out there relaxing, only when guests are here.
I didn’t stay out long, about an hour all up. I was tired after that and retired to the lounge to wait for my Darling to appear, which she did a bit later — by which time the two minutes silence was already gone.
I had my usual afternoon nap after my Darling saw my head dropping and eyelids shutting while sitting together watching TV, so I disappeared upstairs to bed.
It was much later when I was woken up and told to get busy, and we both headed up to my Little Brother’s. It was his eldest daughter’s 18th birthday in the morning — and she had also just passed her full driving test. Wow! What a week for her.
We stayed awhile chatting over tea, coffee, and the obligatory McVitie’s chocolate digestives — yum.
All told, it was a straightforward day. Nothing special, one more day nearer the powwow and the answers.
Is that what’s going to happen? Only time will tell.
I’ve got to get up early tomorrow for the oedema nurse at 8 a.m. Goodness, that’s early. Ah well, it’ll be interesting to hear what she has to say. Not that I haven’t heard it all before — because Mum had a weak heart and oedema in both legs for a few years till she passed away.
So I’m off to bed.
Good night, sleep tight.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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