Turning the Corner ?????

2 minute read time.

Hi there all,

Been a while since i blogged but to be quite honest with you havent felt like it and dont know about you but i ve gone off the site since it changed, i prefer the old one, but hey time for change i suppose!

Well im so pleased with myself, been to tesco s to meet a friend for coffee something which i havent done since diagnosis wow!!!!  On with the face and lips and off i went, felt great, walking into tesco s i thought "Im back" lol.  Think my purse thought so too cos i bought dress, cardigan and jumper! well i had to treat myself didnt i?  Joking apart its been a couple of weeks now since i ve realised i want to go out and get back to normal, my side effects in my mouth are far from gone but am managing them dont seem to be having as much mucus and swallowing more easily, throat still sore to swallow but hey its only been 7 weeks since tough treatment!!!!!!   I think my energy levels are up, those shakes im putting down my peg must be a wonder treatment!!!  To be honest i do forget to take them cos im never hungry but i keep getting swiftly reminded by the kids lol!!!  I know i have a long way to go and probs i l still have "off" days but todays good.   I reckon if my tongue wasnt so injured by the treatment i would be eating  normally, i go back on the 30th November for check up think im gonna ask them if there is anything apart from mouthwashes, i want something longer lasting.  Im weaning myself off the oromorph only 10ml s now before bed none in the day so thats good cos that makes you drowsy! 

Another thing to boost me was yesterday my 17 year old passed her driving test, she soooooo wanted to pass and she got her wishes, she can now go to work independently, no more buses in the cold weather, since my illness its been hard for her, she s got a car so the worlds her oyster now lol only thing i do worry a bit when she s out but you cant have everything. 

Anyway thats my update for now hope everyone else is as content and if not remember there are good days and bad and with good friends and family we can cope even if it doesnt seem like it at the time, this devastating disease definitely makes you a better person, i said to my friend today "i know ive changed, i feel a nicer person "lol hard to understand i know but now im more laid back and think there are more important things in life, good health being at the front of the queue, im alive with my family and thats the best tonic in the world.

Love n Hugs to you all

Jill

x

 

 

Anonymous
  • FormerMember
    FormerMember

    your story is an inspiration to me and my family.  My mam was diagnosed last week, primary tumor on tonsil, secondary in lymph gland on neck.  Waiting for the all clear (hopefully) that it hasnt travelled to her lungs.  Treatment expected to start January (although we have meeting with oncologist a week today so will know more next week) and will consist of 6 weeks intense radiotherapy and chemo.  Hope you have continued to make a full recovery.  

    Love Kelly xx

  • FormerMember
    FormerMember

    Hiya Kelly im 10 weeks post treatment of 30 radio sessions and 4 sessions of chemo i should have had 6 sessions but i was too sick.  I have come a long way since treatment but i still cant eat normal food and i have my peg in and take my food down that, I would say at the moment the worst thing is my tongue it is sore and cant move it around like normal, this apparently is from the radiotherapy, they tell me it will get better but when i wonder??? I had my tonsils out and the lymph node in my neck then all the treatment, everyone is different arnt they? To this day i think its surreal this has happened to me as i was so fit and well other than the odd bouts of tonilitis over the years, im impatient to get well but they say its still early days for me, i send my love to you and your mum and please dont hesitate to contact me if you want to ask anything else.

    Love n Hugs

    Jill

  • FormerMember
    FormerMember

    Hi Jill,

            Well done you, in a few more months you should start to see a big difference with the tongue and throat pain which will make eating much easier!

    I found the 1st Christmas a wee bit hard and sat at the kitchen table sniffing every one's dinner,lol,but hey Jill this will be my 3rd Christmas post-treatment!!!

    Congrats,on your daughter passing her test, your turn to get taxied around now,lol!

    Any way Jill have a wonderful Christmas with your girls,you all deserve too,

    Take care, big hugs,

                                Alison.x

  • FormerMember
    FormerMember

    Thank you alison you are my inspiration at the moment, hope you continue to be well and i hope you have a lovely christmas and even better 2010.

    Love n hugs

    Jill

    x

  • FormerMember
    FormerMember

    Hi Jill,

    Great to see things moving in the right direction and that you're finally getting out and about:D

    Well done on to your daughter on passing the test. Glad you're letting them nurse you - 3 against 1 - just do what they say, haha.

    Hope you all have a lovely Christmas and a great 2010

    love karenx