Turning the Corner ?????

2 minute read time.

Hi there all,

Been a while since i blogged but to be quite honest with you havent felt like it and dont know about you but i ve gone off the site since it changed, i prefer the old one, but hey time for change i suppose!

Well im so pleased with myself, been to tesco s to meet a friend for coffee something which i havent done since diagnosis wow!!!!  On with the face and lips and off i went, felt great, walking into tesco s i thought "Im back" lol.  Think my purse thought so too cos i bought dress, cardigan and jumper! well i had to treat myself didnt i?  Joking apart its been a couple of weeks now since i ve realised i want to go out and get back to normal, my side effects in my mouth are far from gone but am managing them dont seem to be having as much mucus and swallowing more easily, throat still sore to swallow but hey its only been 7 weeks since tough treatment!!!!!!   I think my energy levels are up, those shakes im putting down my peg must be a wonder treatment!!!  To be honest i do forget to take them cos im never hungry but i keep getting swiftly reminded by the kids lol!!!  I know i have a long way to go and probs i l still have "off" days but todays good.   I reckon if my tongue wasnt so injured by the treatment i would be eating  normally, i go back on the 30th November for check up think im gonna ask them if there is anything apart from mouthwashes, i want something longer lasting.  Im weaning myself off the oromorph only 10ml s now before bed none in the day so thats good cos that makes you drowsy! 

Another thing to boost me was yesterday my 17 year old passed her driving test, she soooooo wanted to pass and she got her wishes, she can now go to work independently, no more buses in the cold weather, since my illness its been hard for her, she s got a car so the worlds her oyster now lol only thing i do worry a bit when she s out but you cant have everything. 

Anyway thats my update for now hope everyone else is as content and if not remember there are good days and bad and with good friends and family we can cope even if it doesnt seem like it at the time, this devastating disease definitely makes you a better person, i said to my friend today "i know ive changed, i feel a nicer person "lol hard to understand i know but now im more laid back and think there are more important things in life, good health being at the front of the queue, im alive with my family and thats the best tonic in the world.

Love n Hugs to you all

Jill

x

 

 

Anonymous
  • FormerMember
    FormerMember

    Hi Jill

    So pleased to hear that you're finally able to see round the corner. You're right, this disease certainly puts things in perspective and your priorities do change. Like you, I have good days and bad days, but try to enjoy those good days as much as I possibly can. I guess the only thing that gets me down is not being able to do all the things I would like, and yes, that includes the housework.....never thought I'd say that!!

    Angela xx

  • FormerMember
    FormerMember

    Hi Angela, my biggest thing is not being able to eat food and having no taste buds, its driving me mad, im forever trying things and nothing taste s the same and clogs up and hurts my tongue, i end up spitting it out, i can potter around and do small jobs looks good on the surface but dont move anything lol.

    Thanks for your reply and nice to hear from you.

    Love

    Jill

    x

  • FormerMember
    FormerMember

    wow!!! jill ....im so pleased to hear you are getting out n about! ..... how lovely a good natter over coffee with your friend ....AND .... shopping spree too!!!!

    cheers ! hun ..heres to more ...girlie days out!

    xNx

  • FormerMember
    FormerMember

    Hya Jill,

    You and I have a lot in common cant taste smell or talk. 9 months ago I had to been fed thru a Nasal/Gastro tube. I had to keep it in for 6mths.

    Now Im 2 stone lighter. It saved me a fortune in food.The Cancer I have is called Laryngeal cancer where they removed all of my voice box and 6 lynph nodes. I,am now on soft foods so I can swallow easier. But hey nobody has to listen to my singing any more and thats a blessing.

    So if you want to be friends I would be delighted if you would.

    Take care and be safe Regards.Sarsfield.xx

  • FormerMember
    FormerMember

    hi there,im glad your feeling a bit more human! Next youll be getting your daughter to take you lothes shopping in her car! enjoy and dont spend too much xx