getting tired now.

1 minute read time.

I have been the main support for my mother and father since the diagnosis of cancer 10 weeks ago. In this time I have had to neglect my time with my daughter and things at work. Use up all my leave to try and engage surgeons who to be quite blunt seem to play god in this case.im a gentle soul and really just want my father to have his previous wishes consent and next of kin feeling to be listened to. I don't want to have to shout to be heard . But time and time again I'm told this is the only way to get things done. My poor dad has suffered delerium from all the pressure on  him following being refused his op less than 24 hrs when it was scheduled.  My dad will die from this cancer unless he is given treatment and my poor mum look like she is about to have a stroke. I sat and sobbed today .... The apt we were told was booked was a total cock up. The name given to family does not exist and my father is still no further forward. I'm so very sad and don't know what more I can do. I don't want to shout I don't want to be difficult  I just want the most basic human right to be given ....The right to life. How many more people a have this experience. What was the outcome . The answers  the way to move things forward. 

Anonymous
  • FormerMember
    FormerMember

    Ok,if I was you,I would shout,get control of this situation,phone,bother and bother again,call the consultants' secretary,ask for call backs,anything that you can focus on to clear the crap out of the way.I have had this infuriating and distressing experience too,but keep in mind,you are the voice here,dont leave this to chance or you will feel regret not doing something,dont actually shout,be polite but very clear,you are representing the patient and you want to know,whats next. I know family commitments are hard to keep up but it will get easier if you assert yourself.All the best.x