I'm glad that I found MacMillian. I haven't found anything like this in the US. The American Cancer Society tells you how to raise money for them. Their resources are telling you go to your state welfare office for help, and they'll give you a voucher for used clothes at a participating used clothing store. I just needed information.
What little information I got was almost all wrong. Then this is the only site where it's easy to read other people's blogs, and talk to each other. American cancer sites are fragmented between competing cancer associations and a little information of cancer posted by competing cancer clinics. I go to MD Anderson, and I finally got information from the Sloan-Kettering site.
I went to the Skin Cancer Association to find out about sun blocks, and bought several types. When I received the approved sunblocks, they said not to put on skin damaged by radiotherapy.
I desperately wanted somebody independent to go with me for my first appointment-somebody neutral- I kept calling the clinic-over and over-and asked what to expect for a face skin cancer visit. They wouldn't tell me. Today, I saw your list of recommended questions. I did ask these, like what is the probable outcome of a treatment? What will happen to me? The doctor wouldn't even answer.
I now have a team of good doctors-but it wasn't easy to get rid of the doctor that wouldn't answer any questions at all, and lectured me about thinking too much.
