Hi started this blog but do not know what i am doing really. Not sure how all this blog thing works so i hope i manage to create this blog.
Just want to write how things seem to be progressing with my hsubands illness.
Short description of how things are. My husband is a stroke victim and is unable to communicate but his intelligence has not been affected. It has been like this for 12 years and i have basically made most of his judgements for him or as the medical profession put it i am his advocate. Since being diagnosed with inoperable lung cancer last August it has added extra pressure to my role as his carer.
After being diagnosed without a biopsy it was decided that no further treatment would be offered only palitive care for any symptoms due to the fact he just wanted a quiet life without doctors and tests having had enough of this over the last 12 years. Having treatment would not have made a lot of difference and we had to take into account that it would have made him ill anyway. So here we are now. After nothing being much different for the last 8 months he is now getting more and more tired. I am predicting what will happen next before it happens and seem to be getting it right. Over the last two weeks he has started sleeping most of the day now has no interest in doing any of his little chores or hobbies. I then predicted that getting in and out of the bath would be a problem. This was the case today, so that is something i am going to have to sort out. This next problem may sound silly but he needs a hair cut and i know that tomorrow will be the last time i will be able to get him in the car and get him to the barbers and believe it or not it is important that i do this so that is the top of my list tomorrow.
I once read a post that it was best to get all the things which you need for bath and toilet time ready for when assistance was needed. I now see the sense in this but at the time i did not want to have these things around and offend my husband. I am just hoping that it does not take long to get these things in place.
I hope my blogs will help other people when they are reaching the end. I do not want to upset anyone and if anyone can read my blogs and give me further advice please do. Now here is the best part of this blog my husband is obviously getting closer to the end, how close i do not know, but as yet does not seem to be in any pain or distress. I am trying to stay calm and in control for him and i think there is a nice atmosphere in my home at the moment and i hope i can keep it like that for him.
Thanks for listening. My thoughts are with everyone out there in this awfu situation. xxxxx
Linda
