To date this is one if not the hardest blog to write,where do I start?.We have had to increase Mo's steroid dosage from 12mg to 16mg per day.Unfortunately the cancer seems to be spreading far quicker than the steroids are working,if they are.This isn't normally what happens the progression of Mo's cancer and the subsequent increase in steroids is a lot quicker (less than 6 weeks)than us and anyone,including Kath the Macmillan nurse has ever seen.This obviously is a major concern for all of us,technically its uncharted territory.In the last 24/48 hours Mo has been in bed she's been very sleepy,extremely upset,very tearful and confused.She has limited mobility and her urinary incontinence has worsened even though she isnt drinking that much,has no appetite which should be increased because of the steroids,not good,Mo is also having hallucinations and very,very scared and frightened.Friends and family all knew she is dying but the rapid decline is still not easy to swallow all we can do is keep her painfree,comfortable and surrounded by familiarity which is why she will die at home and not in the hospice a decision which was also very hard to make.Now is the time Mo needs to fight...and hopefully she will!!xx
