The Dying Game 6

2 minute read time.

Blimey, I don't believe that it's 6 weeks since I last updated my blog.  I guess the Christmas planning and purchasing frenzy has banished all thoughts of liver cancer from my mind (if only!)  This year we're having a freezer special Christmas - no cooking from scratch, I'm afraid!

The morphine patches continue to do their work - I have good days and bad days, but mostly good, which is great.  I'm also on steroids and diuretics, and the size of my kitchen drawer drug collection has doubled.  I've also got something called a 'just in case' box of drugs, which I'm not supposed to touch - it's sealed and contains all sorts of mystical potions and implements, and sits on a high shelf out of harms way.  Sounds like quite a good idea for those of us who live in rural areas where finding the right kind of drugs is sometimes a bit of a run around.  I'm a bit worried about being caught out over the Christmas period - but I guess it'll be OK.  My first Christmas without any alcohol - hey ho!

My big problem at the moment is oedema - legs and ankles, and abdomen.  I've put on about a stone since October, when it all started, even though I'm eating a lot less.  It makes me very breathless when going up hills or climbing stairs, and there's no chance of looking glam on New Year's Eve, I'm afraid - though if any of you have the same problem, M&S do a great pair of stretchy wide leg trousers with an elasticated waist, which are so comfortable, and can be dressed up (hope this doesn't break the advertising rules too much).  I'm off to the hospice's lymphoedema clinic next week so hopefully this will help. 

I feel seriously lucky to only have had a couple of month's ill health so far, even though I've got such a poor prognosis - I guess this is due to the health care support we get in Wiltshire, as from reading other people's blogs it doesn't seem to be the same everywhere.  Though I always feel as if I'm tempting fate when I write something like this....

I share my blog with my dear daughter (she's 24 and lives in Sheffield) - so thanks very much to all of you who have replied in the past.  Your comments and support make it so much easier to get through the bad days.  Especially for her, it's really helpful to know that we're not alone.  Have a great Christmas everyone!

 

 

Anonymous
  • FormerMember
    FormerMember

    Diltongal - You truly are an inspiration. Your strength is a lesson to me, and I'm just the carer. May it continue for a long time to come.

    With every good wish,

    Tricia.X

  • FormerMember
    FormerMember

    HI there

    just wanted to say a great big "thank you"!

    I've just read your 'dying game blog' ( my dad is very poorly and I was searching the site to try and get some insite into what he's going through) and it was a complete tonic (even without the gin!)

    Especially enjoyed the line about your son and the accociated hallucinations. I was going to suggest you take up writing but after seeing your profile it looks like that was (sort of) your day job.

    I've just listened to the latest "funny" on Radio 4 and your blog beats it for laughs hands down!

    Thanks again and all best wishes.

    Ruth

  • FormerMember
    FormerMember

    Hi Diltongal,you must be feeling very

    uncomfortable, but still keeping your

    sense of humour, im sure they will sort you out at the hospice clinic,[your

    lymphedema not your humour].Is your son

    doing the cooking.lol.Anyway have a

    peaceful Christmas and dont leave it to

    long before you blog again.

    With Love Lucylee. xxxx

  • FormerMember
    FormerMember

    Just wanted to say hello! Also surely 1 drink at Xmas won't hurt or a glass of champus on New Years Eve. Have what you want, why not? Only of course not if it will make you badly. Take Care Love Julie xx