The Dying Game 5

1 minute read time.

Well, it's been a bit of a roller coaster with the liver capsule pain (caused by my advanced secondary liver cancer) over the last week or so.  Last Saturday I felt well enough to go to Westonbirt Arboretum to see the lovely Autumn colours - but it proved too much.  I was in tears trying to get into the car for the drive back home, it was so painful.  At home I took a strong dose of painkillers, but it got so bad that we had to call the out of hours doctor at around 10.00 on Saturday night.  

45 minutes later he drove up like a knight in shining armour in his specially designed 4 wheel drive, blue flashing lights blazing, and descended into my living room like the hero of a Bollywood movie - all gold teeth, slicked back hair, tight white shirt and a case of drugs to die for.  The bit where he stuck the diamorphine injection into my right buttock was less romantic, but lets face it, we cancer patients don't get much to fantasise about.

Monday morning the rest of the healthcare team were over me like a rash.  It seemed that every time I coughed someone was ordering yet another test.  I've had so many different opinions on my medication that I just kind of go with the flow and do whatever feels comfortable.  Anyway, at least it seems to be under control (for now), and considering some of the experiences you other bloggers have I shouldn't moan about having too much attention.  I was able to do some shopping and get my hair done today, so that I look vaguely human.

Well, next week I've got the hospice nurse Monday and district nurse Tuesday - life's a constant whirl of appointments!  But I sure am glad I'd going through all this at home rather than on some hospital ward - things have moved on so much over the last 20 years.  But I guess the big tests will come when things start getting really serious.

 

Anonymous
  • I am a cancer patient and now I am going to say all the 'things people should not say to cancer patients' but I feel I must comment on how brave you are being and how well you seem to be coping. I know these are hoary old cliches but hell... they happen to be true. You also still seem to have retained a great sense of humour - I loved your Bollywood doctor arriving like some superhero line.

    I know the whole 'whirl of appointments' scenario too - I was filling up my wall calender yesterday with all the medical appointments. In the old days it used to be parties but now its visits to doctors and nurses! Bum!

    Keep blogging!

    Best wishes,

    KateG

  • FormerMember
    FormerMember

    I am glad your pain has been sorted out love and by a gorgeous doc too. Hey you go girl and look out now you've had your hair done! Take care ....love carol x

  • FormerMember
    FormerMember

    Stay positive & enjoy every single day. Your blogs are amazing, your attitude & determination will help you all the way. I lost my Mom on Tuesday, she was only 56, 8 weeks from diagnosis to death. Unknown primary, official cause of death Metastatic Adenocarcinoma of unknown primary. She went peacefully and looked beautiful. I hope my venting does not offend you, I am just trying to say your doing the right thing by facing cancer head on and giving it your best shot. You go girl!  

  • FormerMember
    FormerMember

    Thanks so much for your blog.  I hope your pain eases.  You remind me of one of my favorite writers, Erma Bombeck, known for her housewife humor writing about everyday truths with humor and wit.  Keep blogging, please!

  • FormerMember
    FormerMember

    Sorry to hear you have been poorly. I too had problems and needed the out of hours service. They took five hours to phone back and when they finally did a docor told me that it was a classic symptom of taking too much morphine. What a load pf codwallop how can ocular melanoma be typical in any way. I did go into the hospice two day later and i was severly dehydrated from the two lots of water tablets I had been prescribed. I am glad that you were seen so quickly

    Take care

    kim x