new treatment plan

Less than one minute read time.

well as i thought and my oncologist thought too surgery isnt an option so she has decided to put me on chemo radiotherapy, cistplatin weekly with the radio for 6 weeks. plus internal radiotherapy afterwards. This new treatment is to start in 3 weeks or so once my bloods are back to normal and scans are done ( i have pet scan on 19th). i am not sure how i feel about all of this just  scared,worried, nervous, alone everything to be honest. my mind is in overdrive about what ifs and all that and i am normally such a positive person but just now i've hit a hole and i know give it  a few days i'll give myself a kick up the arseand i'll be back to old self again but finding it hard to be positive. Oh i am sorry for my rant i prob dont make any sence

 

love sarah x x

 

 

Anonymous
  • FormerMember
    FormerMember

    hi sarah, oh yes i've been in that black hole too, its natural to feel despair, but like you i 'get a grip' later. its the unknown and torturous waiting game that is so hard to get your head around. all i can say, you're not on your own, think positive, the mind is a powerful tool and fight this, because you can do it,

    thinking of you xx

  • FormerMember
    FormerMember

    hi sarah, excuse me for asking but do you have cervical cancer as it looks like you are on the same treatment plan as me. i have just finshed my 2nd week of chemo and radiotherapy is not too bad just drink and eat plenty and rest when you can.  my oncologist has also said i am for internal radiotheapy afterwards.  you are not alone with these feelings you mentioned i also feel like this and find it hard to be postive at times. thinks its just a shock to the system.  Hope this helped.

    luv medway xxx (Maureen)

  • FormerMember
    FormerMember

    Hi Maureen , yes i have small cell cervical cancer, i have already had 4 cycles of chemo cisplatin/etoposide. How are you feeling yourself with the treatment?

    Sarah x

  • FormerMember
    FormerMember

    Hi Sarah,

    I can imagine how you must be feeling but by taking it a step at a time and keeping positive I got through it. It is difficult, and yes, even now I have dark thoughts occasionally, but then a swift kick up the backside usually gets rid of them and I think of the things I will be able to do after this is all over.  

    I have two children 37 and 35 years of age plus 3 grandchildren, so have lots to live for and they keep me going, as I said to my husband, the only option was to get through the treatment and come out the other side.  Now have about 5 weeks to go until I see my oncologist for the results, so keeping everything x’d.

    You have your husband and lovely children who will help you through this but do be prepared to feel tired, this I found was the only symptom I really had and quite hard to accept (now have pins and needles in my hands and feet though as a result of the chemo – can still walk so not a problem).  I still insisted I could do most things and got very frustrated when I couldn’t.  I wanted to stay as ‘normal’ as possible, didn’t want people to treat me any different but in the end had to accept that I needed to pace myself, otherwise I wouldn’t be able to do anything because I was so tired.  Some days (not many) I sat reading most of the time but on others would potter around doing small jobs in the mornings and perhaps having an hour’s sleep in the afternoon. With young children I can understand this may be difficult so do accept any offers from friends who want to help you look after them.

    I found all the staff at the hospital I attended absolutely brilliant and so supportive, especially when I had to stay in for the internal radiation and I am sure you will find the same where you are; they all go that extra mile to ease any fears you may have.  The radiographers who actually carried out the brachytherapy were unbelievably kind and this made what I thought would be quite a daunting experience much easier to handle and I am sure you will find the same.  

    It is natural to worry about the unknown, we all do, but you will get through this treatment and what’s 7 weeks out of the rest of your life!

    I know I can ramble at times but do hope some of what I have said helps.

    Keep in touch.

    Pearl

    with lots of ((((((hugs))))))

  • FormerMember
    FormerMember

    Hi there i totally understand, i'm 37 with a daughter of 17 and i totally understand how you feel. the radio and chemo knocked the sh!t ou of me!!!  I finished my brachy on 5 jan and still get tired and worn out.  Sometime i feel like my daughter and partner feel like im just off on the but they dont realise i still do all the house work and when they get home im knakcered!!  does anyone else feel as though they are taken for granted!!!!!! I know they dont mean to though but cos im not having treatment anymore its almost like i havent had cancer!!......