My husband has had gvhd of the gut, followed by gvhd of the skin and liver. Been told he won't be able to have the medication for a 3rd time. Has anyone been through the next stage of having the blood flushed?
FormerMember
Hi Paddons,
Hope you don't mind me commenting on your blog - I wanted to let you know that you're more likely to find someone who has been through this if you post in a group rather than as a blog post. I can see you're a member of the AML group, so please do try posting your question there too.
If you'd like to talk through your questions and concerns with someone, you could also give our Supportline a call, on 0808 808 0000. The line's available Mon-Fri 9am-8pm and our team are on hand to support you as best they can.
GvHD can be really nasty, has he been asked if photopharesis could be used? Thinking of you both. There is a group on site for stem cell transplants for blood cancers which as yet has little about GvHD, (its a new-ish group) but you'd be very welcome to join and post about this.
