Sheer frustration

Less than one minute read time.

I have lost complete faith in the NHS.  They was debating whether to send dad home or whether to wait for a bed to become available at the hospice.  They took him off IV fluids the other night and they was to see how he was managing with drinking fluids.  Both his legs have swollen up because the tumour is blocking both lymph nodes now so his legs are massive.  I go in today and speak to the nurse and she tells me he has been taken off the waiting list for the hospice, they wouldnt have told us if I hadnt asked.  I am absolutely fuming, he is already started the not drinking or eating he has a little food which the hospital has deemed enough.  I know they are going to send him home and we will be back where we was a couple of weeks ago.  Words cannot decribe how mad I am, its also a Friday which means there is nothing I can do till Monday when he is being released on Sunday.

Anonymous
  • FormerMember
    FormerMember

    Awww Terri what a rotten time for you all and how totally frustrating.

    I really don't know what to say.

    Love & Strength

    Debs xx

  • FormerMember
    FormerMember

    I'm sorry I don't know you're background but will mac nurses not step in and help? surely they can get him to a hospice if he really needs to be there? I hope it works out o.k for you all and will keep you in my thoughts.

    Jackie x

  • bit of a long shot to help but does your dad have a social worker and is there an agreed care plan in place, without it the hospital should not be sending him home.

    thats the basics they have to follow if it helps, but as I dont know your dads circumstances it is hard to advise further especially if you are his main carer.

  • FormerMember
    FormerMember

    No one has mentioned a care plan to me.  Should I mention this tomorrow? Mum will be his main carer but it is me who deals with all the medical staff etc about this.  Basically the hospital has seen he can get up to the bathroom and eats a little and drinks a little and they just want him out so they have a free bed.  It feels like they are just thinking he is terminal so theres nothing further they can do for him it is so frustrating.

  • FormerMember
    FormerMember

    Terri, when my Dad was terminally ill his social worker told me he couldn`t leave the hospital without a care plan.. johnr is right and I  would certainly mention it and tell the sister or senior staff nurse on Dads ward that you need some privacy to talk to them, I used to find it so upsetting when they just fobbed me off with my questions and even worse when they talk to you in the hospital corridors!!!  Don`t let them tell you what is best for your dear Dad...you need help and im sure your mum will need some help and back up too..

    I also think it would help you to ask to speak to the hospital mac nurse, there should be one in the hospital even if your Dad has not been assigned one.

    I am so sorry for all your pain and worry but understand it all too well.

    Love scarlet x