Hi all
Just returned from my first visit to the consultant. Had bloods done again for him to look at.
He took details & we discussed options (i had said what i knew & had read about)...
He believes i've probably had CLL undiagnosed for a couple years.
As with most its watch and wait initially with a CT scan booked to check my lymph nodes in the next 2-3 weeks.
I have to return in 2 months (late October) for another bloodtest & chat with him & obviously discuss CT scan results.
He doesn't think at present anything will be done for a couple years but did ask about brothers/sisters for Bone Marrow matching.
I discussed the extreme tiredness & night sweats & how hot i often feel & said maybe i should listen to my body a bit more & refrain from work when i'm too exhausted. I've always put this down to the Crohn's disease i have (certain days i go into work & struggle to stay awake at my keyboard).
All i've to do now is tell my family still :( then i guess i can rest easy & learn to live with it like i've done with my Crohn's for 25 odd years.
Dave
FormerMember
Hi Dave, I wish you luck with telling the family, I know how difficult this can be. I'm sure once they know they will get on with giving you loads of support, just like your 'family' on here lol.
Like the doctor says, take it easy and rest when you need to. Not easy, but then neither is running yourself into the ground.
I hope you have been able to speak to your family. I know this is a very hard time for you and your family at the moment but once the family know what is going on they will give you all the support you need.
You may well have to rest up more than you have been but most importantly stay positive that is the best way to approach this.
Dave if there is anything at all you want to know or we can help you or your family with just send me a private message like I said.
We have been where you are now and we know how hard all this is for you and your family so dont be afraid to send us a message.
my dad has the same leukemia as you. he has just had a bone marrow transplant. i can remember the day when i found out about it . i wish you all the best of luck at this difficult time. keep in touch and let me know how you get on
Hi Teakbank, I bet that's a relief now that they know. I hope all goes well for you for the future and you manage to get early retirement. Best wishes to you, Christine xx
