Hi
I'm curious to know if anyone is experiencing side-effects from herceptin? I've been having it 3 weekly for the last 9 months, the first 6 were given with chemo, and am to continue with it for another 7 months, so in effect a year by itself. I have it on a Friday and now by the Monday I am achy - legs the worst - and sooo tired. Not as bad as chemo but I am having to take to bed and feel like this for a good week now, a little bit longer with each one. My oncologist tells me this is ok, I have been treated very aggressively. I know some people do not experience anything, and am puzzled as to why this effects me so much? Any thoughts on this much appreciated...
FormerMember
hi suzy i hav been having herceptin about 9 mths now found latlely that it makes me very tired and that my joints ache can hardly walk some times also gives me a bad haedache for about 3dys after its given i hav alot off sweats my onicolgist says this can happen and afterall it is still a chemo drug.fist 13 where fine had no problems takes me 3 or 4 days to get back to normal now seems we all react diffrently no one seems to no why don,t no if this helps
Hi doris Thanks for your comment, it definitely helps to know that other women are experiencing similar side-effects. I'd heard and was told all about chemo but no-one had mentioned herceptin to me and I had assumed (naively?) that there weren't any! I too get hot sweats but have also been put through an early menopause due to chemo so wasn't sure which one to put it down to, my face can go bright red! I'm also finding that it takes just a little bit longer to get over it each time.
I wish they would warn a person about the Herceptin side fx - I was told there were none apart from "feeling fluey" for a couple of days. I thought there must be something wrong with me and/or that I was being lazy and whingeing . I am very tired, sweats, flaky nails, dry hair, etc. Only two more to go and of course it is better than Chemo and Radio and of course I am grateful to have it but very fed up with being knackered all the time and can't wait to get back to being my usual energetic self. Good luck to all having Herceptin on here. :0) xxx
