how can i get my mum to talk instead of shutting me out

3 minute read time.

In 2007 my mum had breast cancer at the age of 69.  She needed radiotherapy only and made a full recovery, she went for screenings and only had to go once a year as everything was ok.  Mean while from 2008 she started suffering from frequent water infections, would complain of a pain round her front to half way round her back on the left side.  She must of put a water sample in every week fortnight for almost 18 months.  Numerous water infections were detected and anti biotics were given.  Eventually she had an appointment with a consultant which i attended with her, explained what was happening, and his response was it is not gall stones and he didnt want to put her through a operation at her age when the symptons she has said would not go away by having operation.  No further appointments were given yet she continued to be in pain.

January this year i noticed a big chance in my mum, she went from jumping on bus and going to supermarket for a loaf of bread, to not wanting to leave the house.  Within 10 days of this happening i had taken her to see an emergency dr, who took one look at her and said take her to A&E.  I did this and she was admitted to a local hospital where they diagnosed a 'very bad water infection' and discharged her next day.  Her symptons were very servere and i took her back to her gp and was begging him to admit her to hospital again.  Was told there was a procedure to follow and hospitals are not the best place for people ill to be!.  He did arrange for an emergency camera to her stomach and her bowel.  When this was carried out one weeks apart they found nothing, again i took her back to dr and demanded that something happen, told him i wanted her weighed as she weighed 10s10lb on 1 feb when he weighed her she weigh 9s4lb (middle of march), he agreed to send her for a camera into her bladder and her kidney gave me the forms to 'choose & book' her appointment, i came home straight on pc and booked her appointments, one was 7 weeks and other 9 weeks from that date.  By this time my mum was in constant pain, stopped eatting due to D&S and really struggling.  My dad had a communtiy matron due to ill health and on visiting him she looked at my mum, said we are not waiting any longer, called dr and demanded my mum be admitted urgently to hospital.  She was in hospital for 10 days when they carried out a scan what does the full body (sorry cant remember the name) and she was then given a consultant, who discovered she has very high grade, invasive bladder cancer, given her weeks to months to live as no treatment would be suitable for her.  She had to have a stent put in her kidney as one kindey had packed up and other was bearly working, said this will give her a little relief. 

She has now been home 6 weeks and sadly my dad died 4 weeks ago, we have noticed mum is changing colour, nurse said yesterday her renial functions are bearly working, she is getting weaker by the day, but refuses to leave the house, adamant that she will not go back to hospital or a hospice.  Over the last 10 days mum has become very angry, bitter and is refusing to talk, just wants to be in her room smoking herself to death. 

I am a person who tends to speak what i think, and although i have great respect for my mum i am struggling the way she is dealing with it.  I have said to her today i may not be able to help but she can talk to me, not to exclude us, i am the youngest of 6 children, 4 live locally, my brother and i are with my mum constantly 24/7 i have just returned home first time in 4 days, but i have noticed when i am going home my mum anger and bitterness increases towards me, I want to spend all my time with my mum, and have no regrets on that front but today i feel like i need to get away from it all. 

Sorry to sound nasty towards her, i just want to let her know how much she means to me, maybe im also bitter at losing both parents, i have accepted my mum is going to die, just cant handle her excluding me.

 

Anonymous
  • FormerMember
    FormerMember

    seems to me you have all been through a lot, you lost your dad, your mum has lost her husband, but everyone copes differently, its so very hard to understand why some one isnt behaving how you think they should, i come from a large family too, my hubby daughter siblings and parents all reacted differently to my prognosis, and i have to admit the ones that "shut down" hurt me the most, funnily enough the ones that i was closest to, including my hubby, he went into a serious depression and... is only really getting back to normal after 2 years, but in truth... its because he cant see life without me, how can you fix that?... your mum is ill, and her hubby is gone, and she is probably thinking, that she is 69 and she wants to be with your dad, please dont think wrong of her, she is in pain because of your dad an possibly doesnt want to fight this, i know yoyu think she is wrong, but you arent in her shoes...

    tell her you love her and that it hurts you to see her giving up, ask her what you can do for her, tell her you understand that losing you dad has devastated her, but you still need her to be your mum...

    im so sorry you are going through this....

    COURAGE....IS WHEN YOUR SCARED TO DEATH..... BUT YOU SADDLE UP ANYWAY

    good luck....

    liz xxxx

  • FormerMember
    FormerMember

    I think your mum must be very frightened also. She knows what is going on with her and has also just lost her husband. She must be really depressed.

    I know what you are going through. My dad passed away eight weeks ago today and he became very angry while stuck in his hospital bed. He would get angry with the nursing staff, although I have to say it was only with the ones who deserved it and treated him as if he was a child and would tell him he wasn't in pain when he clearly was. Dad was a very placid man and it was so strange to see him get so angry.

    There really isn't any advice I can give except to say that just be there for your mum. It is hurtful when she is moaning at you, but I'm sure she doesn't mean it.

    Best wishes to you. Christine xx

  • FormerMember
    FormerMember

    thanks very much for your comments, the dr has just visited and asked us to talk her into going into hospital for a blood transfusion, i know she is scared of going back incase she doesnt get home, we have till monday to talk her round.

  • FormerMember
    FormerMember

    Hi Splash,

    You and your Mum and Family have been through a lot. I think in my opinion you and your Family all get together and talk over whats best for your Mum.

    But take her feelings into consideration if she is well enough to understand whats going on,

    either way its not going to be easy.My strength and

    Love are with you at this time.

    Take care and be safe.Love Sarsfield.xx

  • FormerMember
    FormerMember

    Has your mum got a macmillian nurse ,or

    a palative care nurse. Your mum has every right to feel the way she does, all that time being in pain and both of you wanting someone to listen and help. My mum had never been in hospital , but when she had to go she just knew she would never come out again, your mum wants to stay at home, if she had support from a nurse and her doctor and felt that she was able to make her own choices it might make her more trusting. She knows you are doing your best, its so hard for you to watch your mum giveing up, you can only be there for her and do the best you can. You are all still greaveing for your dad and my heart goes out to you.

    With Love And Hugs Lucylee. xxx