What a long and exhausting day we had yesterday at the Marsden when hubby went for the start of his 3rd cycle of chemo. We left home at 10.00 and did not get back until 7.00pm.
There was a panic about the results of the CT scan which were apparently missing as were the results of the two other tests ordered by the doctors. It would appear that although the CT scan had been done and results were on the way over, the other two had not been followed up by the appropriate department.. so many red faces around.
The doctor was not available to see us until 1.30 so after the blood tests we hung around until then. He arrived to tell us the semi good news was that the tumour growth had been contained, in that it had not grown but nor had it shrunk, but gave the appearance of being softer BUT there was a very small 'something' in the liver, which could be a cyst or something more sinister, so hubby has to have an ultrasound on Monday to find out exactly what it is, and at the same time they are doing the other tests which were overlooked. Another long day!
Later that day we saw the Prof and he confirmed what his registrar had said, and confessed they were confused, as with the tumours responding to the chemo, how had this other 'thing' grown unless it had been missed in the MRI or indeed was a cyst. He further explained that as it was very near to a major blood vessel and was quite deep in the liver, if it were proved to be cancerous, discussion would have to take place with various departments to find out the best way forward. But for now, we have to wait until after the ultrasound.
We were shattered, elated at the semi good news then brought down by the maybe bad.
Finally the chemo was attached to the portacath and we left the hospital at 5.30 to get the train home.
More and more waiting - and more chance for my husband to get depressed and negative about the chances of this being confirmed as another cancerous growth.
My mind is in a whirl - Christmas is coming and that is the last thing I need to do right now - I am being asked things and I cannot answer as I do not know anything any more, just that I wish we knew what we were facing and did not have this feeling of impending doom. This is so unlike me as I am totally optimistic, but I can feel the energy draining out of both of us and do not know what to do to halt the advance of these feelings.
The Prof has very kindly agreed to ring us on Monday with the results of the ultrasound to avoid us having to wait again for Friday when hubby has his hospital appointment for the chemo bottle changeover, which is very helpful and kind of him - so roll on Monday!!
