new boy

Less than one minute read time.

hello everyone, ive just joined the community, i was originally informed i had cancer in 2007 ( in the nasal septum), there followed major surgey where i had a total rhinectomy of the nose, radium treatment, implants, prosthesis and dental work. its been a long road, and unfortunatly due to implant failure im still on the journey, ive had my ups and downs like everyone in the macmillan community, and i would just like to chat with anyone with similar problems, or if not similar then anyone who wants a chat, im new to this online business and im not always online but leave a message. thanks. ski

Anonymous
  • FormerMember
    FormerMember

    hello foxy lady, i had biopses (4) at walsall manor hospital then the rhinectomy at heartlands hospital in birmingham, i think originally they wanted me to go to coventry for it, but i said no too far for my family to travel. I had radium treatment at queen elizabeth hospital birmingham, ( i hated that plastic mask they bolt you down with), and after that i attended the queen elizabeth at birmingham,thats where they put in my facial implants ( the implants are in 2 parts, part a. is threaded like a wood screw on the outside but the centre part is fine threaded to accept part b. this ' part a' is screwed into facial bone/skull. part b. is like a fine thread screw and this is screwed into the centre of a, it is this part b that they use to fit the prosthesis to) . I had 4 of these implants, 3 ( in a line ) into the bone behind my top lip area, and 1 into skull bone right between my eyes. when they first did my prosthesis they ran a wire frame round the implants and secured the wire to 2 in the bottom and the 1 between my eyes ( they used part b to secure the wire) the prosthesis at the time had 4 little clips built into it and these clips just clipped onto the wire frame and held the nose on. that was then, but along the way the implant between my eyes failed and they had to take it out, so for the past year or so i have had a temporary fitting, they made a small metal wire frame shaped like the letter T, if you turn this T upsidedown, the --- part is fitted to the 2 bottom implants leaving the longer part of the t facing upwards (slightly inside my nasal cavity), this longer part has a magnet fitted to it, and the temporary prosthesis also has a magnet built into it, so clunk click and away i go, ive just been back in at christmass to get new implants between the eyes, so this april i will see the consultant at queen elizabeth to see whats what and where we go from here, oh yes, prior to radium treatment i had (what was left) my top teeth removed, unfortunatly this created more problems for the prosthetic techs, so i also see a very nice lady consultant at birmingham dental hospital who has and will be again making me a new set of gnashers lol. as you appreciate this all takes time especially when theres a hickup, for my first year i had no prosthetic just a bandage, that was a difficult time all round, and what a joy when i got my prosthetic nose. anyway im going on a bit, i hope i havent given too much information but i hope you find it usefull, so far as i know (they wont commit 100%) they got the cancer and im looking good that way, so plod on mcduff lol. i will say bye for now catch you later . bye  

  • FormerMember
    FormerMember

    wow ski what a lot you have gone thru!  the "mask of stillness" is what i nicknamed it, i HATED it so much.  I had to have a spatula placed over my tongue that hit back of throat to protect tongue, but it kept making me gag, so up the hand would go to stop rads, and that meant more time spent realigning etc.  I never thought to ask for diazapam or something to keep me calm, i had my own music piped through into the room, but it only helped a bit, a truly nightmare experience eh?    You could never give me too much information, i like to know everything lol.    I have only jusy found out that all my teeth have to be removed and i am going to the restorative department at st georges in london on 19th may to be assessed.  Apparently i should have been advised to use flouride trays!  With no saliva the gums and teeth have suffered badly.  Its a bloody nuisance cos I spent thousand on crowns and bridges!!!! Ahh well its only money.    That must have been awful having the bandage for all that time, my friend in the states had that too, he's a musician so I imagine it may have been somewhat worse for him performing etc. I hope it all goes well for you in April.  Its a long road isn't it ski?  And very scary and treatment is brutal, but hey if it all works it's wonderful isn't it?

    Bye for now.  I will send my email via a pm on this site later on today, gotta dash out and do some serious retail therapy lol.  Take care luv FL

  • FormerMember
    FormerMember

    Hi Ya Foxilady

    Retail therapy indeed, you are as bad as my wife.

    Bags,Shoes,Jewelry,Cars, Planes you name it.She will try and buy it.

    Take care and be safe.Love Sarsfield.xx

  • FormerMember
    FormerMember

    hehehe Sarsfield.  Now I draw the line at planes, blame Nick for that, he wants a Europa!  Whereas lil ole me mainly buys shoes and bags hehehehe.   But I am bad I admit.  Take care Sarsfield and nice to hear from you.

  • FormerMember
    FormerMember

    i havent quite worked out how to do some things on the site yet, but i have seen what is bieng said about humour, humour and the ability to laugh at oneself and others, and of course the troubles and situations humans and animals find themselves in, has got the people, and this country and its forces through, many many bad times. I have always had a good sense of humour i can laugh at myself or with myself. I was told by a cancer worker  to be serious, its no laughing matter, balls, im the one who got chopped, im the one who goes to bed at night with a hole in his face, im the one who doesnt cuddle up to a loving wife at night because i look like the predator, i have to look in the mirror every morning without fail, and then  i have to face what the day brings. I am so lucky my wife is my childhood sweetheart, we laugh and joke together, we cry together.we are soul mates, and she knows how much i love her with or without a face. but everything is so bloody serious and the crap throwed at you by government departments will grind you down, you have to laugh or you will breakdown and become depressed, or worse you turn into the old grump from your childhood that were never young once. ' pull up a sand bag, in my day lad' anyway enough everyone l.o.l and rock on