new boy

welcome Ski,

I'm afraid I have no first hand experience of cancer as it was my husband who had the cancer but I have found great support and love from everyone on this site.  I am sure you will find someone going through the same experience as you.

Start a thread on the forum about what you have been through (going through) and look and see if this is a group that you can join.

All the very best to you

Love and hugs Stacey xxxx

thank you staceyf, i will keep looking. xx

Hi Ski,  another nasal septum cancer survivor wonderful.  I too had nasal septum cancer.  I did not have a complete rhinectomy but a right lateral rhinotomy, right medial maxillectomy and excision of nasal septum.  I finished treatment in Nov 05, ie the surgery, radiation and chemo.

Many side effects, but all copable and I am now used to the "new me".  As you have probably been told, this cancer in this location, is very rare indeed.  I am doing extemely well and am also extremely happy in my life.  Though not so long ago I can remember thinking I will never have "me" back or my wonderful life back , ever again.   What was a curse at the time has in fact turned out to be a blessing in disguise.  But it does take time.  And I have to remember how lucky I am, as some do not survive this terrible disease.  I am thankful everyday for being alive and well.  I look forward to hearing from you.  I know of 2 other people who have the same cancer in same place, and they live in the USA.  I have searched for 4 years as well to find other survivors.  Bye for now and take care

hello foxylady, at last, someone to talk to who knows. me and my rubber nose say welcome, yes i am gratefull to be alive, but i suppose like you ive gone from a hardworking person to a different life style altogether, i cannot go back to my trade or indeed to work at the moment ( its been 3 years), but although i accepted everything the doctors said and was ' strong' I have really come to appreciate my family, who in my hour of need ,have helped me no end, sometimes without realizing. but i must confess although i could see it affecting my loving wife ( of 36 years) it wasnt until 2 years into the whole shebang that it came all out into the open, and thankfully we sorted it. outside my family we have had little or no support, plenty of promises, lol. my daughter got us a internet donngle as a christmass present so here we are ( if were not playing games),(old foggies), remember the old saying lass 'whilst theres breath,. I wish you well in life , hope to talk again. my warmest wishes for you. ski xx

hiya ski, you have to strong don't you, its not for wimps eh?  I know what you mean about it affecting your wife, my partner Nick was my rock, and 2 years down the line it became apparent just how much it had all affected him.  I didn't realise until we spoke about it about 2 years down the line, poor man was suffering from such stress.  Today though we both do not work, which is lovely, and we travel a great deal as often as we can.  So its freed us up to do today what we want and not wait until tomorrow, cos who knows?  I live life to the full each day now and so does Nick, we love and larf alot daily now.  Also i hear what you say about being a hard working person.  I never used to be able to sit down, everyone used to comment on my inability to relax.  These days its hard to get my backside off a seat, unless its for chocolate lol.  Can I ask where you were treated?  I have a friend in the states that had stage 4 NSC and waited over 3 years for his prosthesis and I haven't heard from him in sometime and I wonder if he is ok.  I am thrilled to hear you are on the mend.  Your procedure was so much more involved than mine and when I was diagnosed and they explained everything to me, I was really scared at the prospect of having a rhinectomy.   If you don't mind me asking, how does the prosthesis remain in place?  I know my  friend's is attached to his spectacles, is that the same for you?  I too wish you all the very best for the future and a wonderful life and we will chat again.  If you would like I can send my email address via a pm.  bye for now FL