I'm brand new at this- hoping to reach out to others with mantle cell. My sister (58) has been fighting this ugly "thing" since last November. Sounds like MC is one of the rarest forms of lymphoma, so there isn't a lot out there, although they do know that it is on the rise. Hoping to help and share as we go through this. We have our first appt with the transplant team tomorrow. One step at a time......
FormerMember
Welcome to this site. My cancer was different from your sister's so I can't comment on what she is suffering, but just want to say I hope you get lots of support on here and hope everything goes well with the transplant. Best wishes, Christine xx
<p>A few weeks ago I was diagnosed with Non Hodgkins lymphoma. It has further been isolated to state 4 (with "minimal bone marrow involvement"). Doctor said with treatment, a decent life is possible. Without, dead in a year. </p>
<p>Final diagnosis, was Mantle Cell Lymphoma.</p>
<p>Initially, treatment was planned with R-B (Rituximab with Bendamustine ((aka Trenda)). Another blood test was done and the treatment plan was then suggested to be standard R-CHOP. </p>
<p>I meet with the specialist on Jan 23, to go over the plan. (Implantation of chemo port, and EKG, first treatment date, etc. )</p>
<p>Doctors seem hopeful, but I am not sure if that is what they do with everyone, or if there is a real chance.</p>
<p>I am scared beyond what I have ever experienced in my life.</p>
