First Blog - My Mum's Story (and mine, I guess)

4 minute read time.
Hello there. Maybe you have read my profile, but in summary: I am 30 years old, live in Dorset with my dog. I work full time and I own a heavy horse, for whom I rent a field 6 miles from where I live and do all the work myself. I live quite a country life, have a 200 yr old terraced cottage with no heating, double glazing, modern furnishings etc!! Which suits me fine! (i'm perpetually skint, live in an overdraft and tatty clothes tho!) My Mum (Diane) on the other hand is completely different!! We hail from Hemel Hempstead and moved to Dorset in 1989 (I was 11, hence I became bumpkin-fied after little initial resistance) She is a confirmed townie and a clean and tidy freak. We often joke about her having OCD, at one point in her life the hoover never actually got unplugged and put away, in case someone dropped a crumb! She lives with her perfect partner, they married when Mum was 60yrs which was 4 years ago and they have a perfect new build bungalow, decorated completely in white, with white furniture, white carpet, drapes etc. On the rare occasion I am allowed over the threshold its like snow blindness!!! No, seriously, I am allowed in the kitchen, provided I take off my shoes. And sometimes my socks, if they have hay on them. Mum has been a smoker all her life, she gave up a few years back, then started again as she "didn't have enough to worry about". Great reason! She retired from work this March and has had a cough since then. Her lovely hubby, Neil, eventually convinced her to see the doctor and she was referred for a chest x-ray (she had packed in the fags again now for about 2 weeks). She had an x-ray about 3 years before, which was clear. This was organised at Royal Bournemouth General Hospital. They called to say there was a shadow at the bottom of her right lung and further tests would be needed. This all happened in October, she had a bronchoscopy with biopsy, a CT scan and an MRI scan on her brain. At an appointment with her Oncologist on 10th November she was diagnosed with small cell lung cancer. They were afraid it had spead to her kidneys and so a PET scan was organised, but as it would have been a 10 day wait, they gave her a full MRI instead. She was then referred to the oncologist at Poole General Hospital on Monday 17th November for the verdict. The Saturday before (the 15th) I had dinner with them. It was like the Last Supper. Having read up on the internet, I was pretty sure the prognosis would be bad. She cried and begged me not to let them make her suffer. I think my heart broke. When I went to see her Monday evening at home I feared the worst. When she told me it hadn't spread, and it was confirmed as early stage I couldn't stop crying. It felt like a reprive, my God, it was the first positive in weeks. She started chemotherapy the very next day and for another 2 days after that. There's nothing really of my Mum, she's a tiny little thing, she likes to say she is built for style ! Always loved her clothes and a very young and stylish 64yrs. I was afraid she would have a rough ride with the chemo, but she is feeling fantastic and we went out for lunch today. She says she is feeling completely transposed. Before the chemo, the cancer was making her feel severely nauseous, tired, hacking cough, zero appetite. She says she is feeling better every day and has even got her appetite back and had a steak dinner in the week. She's been shopping and got 2 bandanas and a wig (I worried she would cope badly with hair loss as she is proud of her looks, but she is such a strong old bird, I needn't have worried). She's coming up to her low immune period and so I wont be able to see her for a week, but she is pretty positive and I am hoping things will continue in this vain. The cancer nurses say she isn't an exception, that many people take chemo in their stride and have no (or very few) side effects. She is due to have chemo for 3 days (IV) every 3 weeks for 3 months, then hopefully radiotherapy to finish the bastard off. I live in hope. I must say that we seem blessed with the local health authority down here. The service has been fantastic, incredible even. So speedy and all the staff are amazing. I do hope this continues. I will let you know. Lots of love - Simone xx
Anonymous
  • FormerMember
    FormerMember

    It's horrible news that your Mum has been diagnosed with this monster - but everything else is sounding really promising!  Think there are one or two of us a teensy bit envious about the complete lack of side-effects for the chemo, but it is fantastic that your Mum is feeling better so fast, and also that she is getting such wonderful treatment.  Thank you also for telling us about your own life - the heavy horse sounds amazing.  Wishing you both all the very best xxxxxx Penny

  • FormerMember
    FormerMember

    It was lovely to read your profile and your blog.  I can see the position very clearly.   A friend of mine is passionate about heavy horses, and I love them too.  

    Anyway, It is really good to read about your mother's progress to date.  I was fairly lucky with my chemo, which went on for 7 months, but only half an hour each week, only having 2 bad weeks when I felt really ill.  

    You have faced the worst that can happen.  You have also to hold on to your optimism as well.  Just go from treatment to treatment, and don't be  phased if she has a bad one, and be grateful for the good ones.  It will all come to an end soon enough, and hopefully, she can pick her life up where she left off.

    The all clear is really good news when it comes, but one tends to get twinges, and feel depressed because one is no longer receiving the extremely flattering attention from the hospital staff.  Mostly though, that happens for family reasons, but if it does, don't be overly concerned by it.

    Good luck

    Rwth

  • FormerMember
    FormerMember

    Hi there, you're mum sounds a fantastic lady and it is clear that you are both lucky to have such a close bond. I'm sorry to read about her diagnosis but she does appear to be getting the best treatment which is great.

    I moved down to Somerset just over 2 years ago and live in a market town which feels about 20years behind the rest of the country and I LOVE it lol!

    Glad that you found this site and look forward to hearing how things go for your Mum.

    Take care

    pheonix  xxx

  • FormerMember
    FormerMember

    Thanks for your comments, all advice is greatly received !

    I'll try and put some pics of the horse up soon too :)

  • FormerMember
    FormerMember

    good luck love she sound like she doing great . i was the same on chemo i  sail by only having 4 sick day after chemo  and was ok ish afrer that  i did all most every think just sleepy  and weck  i not had cheno now for 6 weeks and every day i get stronger . your mum will to love to all jjilly ann xxxxxxxxxxx