Silent But Deadly

3 minute read time.

My father, age 65 was diagnosed with terminal metatstatic pancreas cancer following a CT scan in April 2009 after suffering with misdiagnosed conditions since February 2009 (it was thought he had an ulcer, gall stones, pylori...).  He visited his GP so many times and after reading the symptoms of pancreas cancer I find it hard to believe they didn't spot this.

He was dreadfully ill and I after being in and out of hospital with no real diagnosis I finally decided enough was enough and took him to A&E demanding they find out what it was before they sent him home.  It was then he was given the CT scan and the devastating news.

I was in the final 6 weeks of my first pregnancy and needless to say this was heartbreaking for me.   I was so looking forward to my baby but filled with sadness that my father was not going to be around to see her grow up.

We knew the prognisis is poor for this type of cancer and were disappointed that there was no surgery option but at the same time hopeful when he was able to have 3 courses of chemo.  He dealt with the chemo relatively well but after the 3rd round he became ill on and off resulting in him being unable to have further chemo leaving  a gap of around 8 weeks between his previous scan which had showed no change as though the chemo was working  to him having dreadful pain and feeling very poorly.  He went into hospital 2 weeks ago and whilst there had a further CT scan - this showed that he now has multiple tumours in his liver and we were told that there is no further treatment to slow the cancer growth and that the only treatments he can now are to ease his pain.  The doctors cannot give a definite "how long" but they advised that he could have several months or weeks depending on how fast his symptoms worsen, at this point we do not know whether or not he will see Christmas.

Words cannot describe the pain I feel to be living this nightmare.  I am so in love with my little girl but it breaks my heart everytime my dad looks at her as I know he is devastated that he won't be here to see her growing up.  My mum and dad mean the world to me and I just can't imagine him not being here and I worry so much how my mum will cope without him and also nursing him through his final days.  They have been together for 45 years and were just looking forward to their retirement.  My father has undergone 3 operations in the last 3 years having 2 new hips and a heart valve replacement which was only in January this year - how pointless all that pain seems now when he had this demon silently growing inside him.

It all seems so unfair, my father has never smoked, hardly ever drinks and is not overweight - where on earth did this come from?

It is so hard because whilst I want him to stay with us as long as possible I also don't want him to have to suffer and want to fast forward through the pain of knowing we are losing him over and over again each time he has a bad day.

As it stands he is going in hospital tomorrow for a spinal block procedure to see if this can relieve his pain so fingers crossed this works and he can at least get some relief.  Maybe then he will feel more up to fighting and I pray that he can at least be here for my daughter's 1st Christmas.

My heart goes out to every family battling this dreadful disease X

Anonymous
  • FormerMember
    FormerMember

    Thanks for your post Carolyn, I'm sorry its been so long until I replied, I don't know where the time goes and sometimes I don't feel able to come on this site as it makes me upset and then other times I find it comforting.

    I have been going through a bad few weeks, I'm very run down I think with cold, coldsores and just generally exhausted - I think that everything from the past year is now catching up with me.

    I finally picked up dad's ashes the other day - we have been putting it off over and over but actually it was quite comforting to have some part of him back with us.  He said to scatter him at Bridlington with my grandma but to be honest I don't feel ready to let him go yet (he's currently staying with me) and I find myself chatting away to his photo which is stood next to his urn and somehow he feels closer to me.

    What you said about it getting easier I don't think it does at all in fact I feel I'm missing him more with each passing day.  I think at first you can kid yourself that they are just away or in hospital or even that you just didn't visit that week but as the weeks become months you really feel the loss.  I also think that losing a parent or child is the most painful as the bond is very strong. I cannot even contemplate being parted from my little girl and I know that was how my dad felt when he knew he was going, he just wasn't ready to leave.

    I never imagined that I would actually feel physical pain from this loss but I do it is like an ache in the pit of my stomach whenever I think of him.  I'm just trying more and more to talk to him and to remember all the good times because I believe his spirit is around me and I don't want to upset him by being upset all the time if that makes sense?

    I'm also becoming more conscious that my little girl is aware now when I get upset so I have to try and put on a smiling face for her sake, she is 8 months now and is growing up so fast, she gives me such joy everyday and I would not have survived this without her, she has the funniest little personality already and I can see bits of my dad in her, I am so glad that he got to meet her and hold her and I have some lovely photos to show her as she gets older - she will see in his face just how much he loved her.

    Anyway, I really hope you are coping ok and your mum and I will keep checking from time to time if you post any messages.

    Love to you and your family

    Jo xxx

  • FormerMember
    FormerMember

    Hi Jo

    Not been on here for a few months, been trying to focus on getting life back on track, but I'm not sure we will ever find the right route.  Things have not been too bad, we have our moments but I think what is starting to get to us now is that we all keep thinking where we were this time last year.  This time last year the nightmare was just about to start, my parents were on holiday, I was getting ready for mine and then my Dad began to feel unwell, and starting showing signs of loosing weight.

    July I know will be a tough on for us all, the 4th July is my son's birthday, last year we had a family party, it was the last time my Dad came to my house, my memories of him here are running around playing cricket with Josh, I realise now it must have taken every last ounce of his energy to do it.  My birthday on the 17 July last year was spent having scans, and I will never forget the 20 July when we sat in front of the doctor and he told us the dreadful news.  I can see myself now and still feel that almighty feeling of complete despair of not being able to do anything.  All these feeling are coming back to haunt us at the moment, I find myself crying at the most unusual times, usually when I'm on my own driving to work, or something happens and I still think, I'll tell that Dad and thenI realise I can't, but I tell him anyway!  The other day I was shopping and I caught sight of a guy crossing the road, he looked so like my Dad it was unreal, my automatic reaction was to call his name, but then I realised it couldn't be him, I just ran to my car and cried.  People think you are ok and you try so hard to be that especially for your family but the pain you feel inside never goes away, I dread to think how my Mum must feel.  We are going away in a few weeks which I'm hoping will give me some strenght to get few the next few months, I'm sure its only natural to think "what we were doing last year".

    I hope you and your family are keeping well, I will check my post again.

    Take care

    Love Carolyn

    xxx