Silent But Deadly

3 minute read time.

My father, age 65 was diagnosed with terminal metatstatic pancreas cancer following a CT scan in April 2009 after suffering with misdiagnosed conditions since February 2009 (it was thought he had an ulcer, gall stones, pylori...).  He visited his GP so many times and after reading the symptoms of pancreas cancer I find it hard to believe they didn't spot this.

He was dreadfully ill and I after being in and out of hospital with no real diagnosis I finally decided enough was enough and took him to A&E demanding they find out what it was before they sent him home.  It was then he was given the CT scan and the devastating news.

I was in the final 6 weeks of my first pregnancy and needless to say this was heartbreaking for me.   I was so looking forward to my baby but filled with sadness that my father was not going to be around to see her grow up.

We knew the prognisis is poor for this type of cancer and were disappointed that there was no surgery option but at the same time hopeful when he was able to have 3 courses of chemo.  He dealt with the chemo relatively well but after the 3rd round he became ill on and off resulting in him being unable to have further chemo leaving  a gap of around 8 weeks between his previous scan which had showed no change as though the chemo was working  to him having dreadful pain and feeling very poorly.  He went into hospital 2 weeks ago and whilst there had a further CT scan - this showed that he now has multiple tumours in his liver and we were told that there is no further treatment to slow the cancer growth and that the only treatments he can now are to ease his pain.  The doctors cannot give a definite "how long" but they advised that he could have several months or weeks depending on how fast his symptoms worsen, at this point we do not know whether or not he will see Christmas.

Words cannot describe the pain I feel to be living this nightmare.  I am so in love with my little girl but it breaks my heart everytime my dad looks at her as I know he is devastated that he won't be here to see her growing up.  My mum and dad mean the world to me and I just can't imagine him not being here and I worry so much how my mum will cope without him and also nursing him through his final days.  They have been together for 45 years and were just looking forward to their retirement.  My father has undergone 3 operations in the last 3 years having 2 new hips and a heart valve replacement which was only in January this year - how pointless all that pain seems now when he had this demon silently growing inside him.

It all seems so unfair, my father has never smoked, hardly ever drinks and is not overweight - where on earth did this come from?

It is so hard because whilst I want him to stay with us as long as possible I also don't want him to have to suffer and want to fast forward through the pain of knowing we are losing him over and over again each time he has a bad day.

As it stands he is going in hospital tomorrow for a spinal block procedure to see if this can relieve his pain so fingers crossed this works and he can at least get some relief.  Maybe then he will feel more up to fighting and I pray that he can at least be here for my daughter's 1st Christmas.

My heart goes out to every family battling this dreadful disease X

Anonymous
  • FormerMember
    FormerMember

    Hi

    My stepfather had the same condition - where it came from _ as you say - no one seems to know.

    He was fit, active - almist too active - ate healthily (did have the odd drink) non soker for many years.

    He used to take hiomself to the docs as he was convinced something was not right although he was perfectly healthy. He must have had every test avaialbale on the NHS at his own instigations.  (I thought he was suffering from that Munchaussens syndrome where people love hospitals!

    I cannot understand how the hospitals and surgeons failed to diagnose it correctly over a good many years.  He did have a good life and even when he had spent times in hospital he would come out on good form. They never even offered chemo or any sort of treatment like that. I think may be if they had found it earlier they would have been able to help a little more.

    I know I am not offering you much support here and I also will be hoping and praying that he is here for your daughter's first Christmas and a lot longer.

    Take Care love and hugs  Maralyn xxx

  • FormerMember
    FormerMember

    Hi

    I know exactly how you are feeling my dear Dad was given this dreadul diagnosis in July this year, and is now sadly I am sure entering his final days. This evil has just taken him from us so quickly.Like your father, my father has never smoked, enjoyed a glass a wine when out for a meal and has never been overweight. We also question where on earth did this come from?  We have been told the tumour has probably been growing for about 2/3 years and there were no signs until a few months ago , it definately is pure evil.

    My Dad is a good man, a gentleman, the type who opens the door for you and stands up when a lady leaves the room, a true gent. My mum and dad have been married for 53 years, how mum will cope without him I really don't know, they are each others lives.

    I want you to know I feel every ounce of pain you are feeling and as much as I love my Dad I cannot bear to see him like this anymore I want him to be "free".  We have to find the courage and strength to let them go when we know it is time.  

    I pray that your father is here for you and your daughter's first christmas and much longer.

    Take care, love Carolyn xx

  • FormerMember
    FormerMember

    JLB and Carolyn

    Just like to say my thoughts r with u both - our family has been down this rocky road this year

    Mum was diagnosed in April and she was declinging fast but then had a cardiac arrest in August - which in hind sight was for the best for her - this saved her any more months of pain

    Hugs for you both and your families

    Chris xxx

  • FormerMember
    FormerMember

    Thank you all for your kind messages, it is lovely to receive such support from total strangers.  Whilst I would not wish this on anyone it is comforting to know we are not alone and I am sending hugs to you and your families too.  

    My dad didn't get his spinal block yesterday as the hospital never told him he had to fast before the procedure so he had eaten that morning if you can call three spoonfuls of porridge eating!  He now has to wait until next Tuesday so another week of agonising pain and waiting for something that may or may not even work.

  • FormerMember
    FormerMember

    Don't you want to scream sometimes at people who are suppose to be helping you!  I hope this week is not too hard for you, take each day, we have had some lovely days, and some not so, with Dad on this awful journey, each day can be so different I hope this next week brings you some of the lovely ones. My Dad spends most of his time drifting in and out of sleep now but the one comfort we have is that yesterday when my Mum asked him if he wanted anything he smiled and softly said "I'm warm, comfortable, in my own bed and loved" It gave us all such comfort.

    Sending hugs to you and all of those travelling this journey.