Welcoming Sid The Stoma

1 minute read time.

So my journey started way back in the early months of 2023 when I started loosing blood in my stools and on exploration the hospital discovered I had a polyp in my bowel, this was swiftly removed and all confirmed as benign. However bleeding continued on through the yr and the words from the surgeon when i was having it removed ‘I’m not sure I managed to remove it all’ lurked in the back of my mind. I kept going back to the drs who seemed to just brush it off with it’s still early days/your still healing/it might be piles etc but I eventually went for a colonoscopy in Jan 2024 to check and they discovered a rather large polyp had regrown or continued to grow from the part the dr obviously hasn’t got. I was told it was too big to remove via colonoscopy this time so would need an operation. It seemed like forever waiting for an operation date- still bleeding along with many other side effects from the polyp like nausea/back pain/dizzyness. The day finally arrived and after starving myself and pooping for England after bowel prep I went under with a sigh of relief and anticipation things would get better after this. Sadly waking up in recovery I was told the operation hadn’t gone to plan and biopsies had been taken from the polyp but it still remained in tact- my heart slumped. I then waited a further 7 long/anxious months to get another operation date with a more specialised surgeon and went through it all again. This time removal was successful however again more complicated than expected so I had a ileostomy. Obviously this is a massive change to a 44 year old mother of 2 boys who is normally active and a social butterfly but I will get back there. I’m only week 1 post op so still feeling tender and getting used to (after a friend suggesting I needed a name )Sid the stoma. I have everything crossed that biopsy results due in a week or so will finally be positive and put the fairy on top of the Christmas tree for me this yr! 
Any fellow stoma wearer advice, stories etc are most welcome here 

Thank you 

Anonymous
  • Hello  

    A cracking read - although the end was not what you wanted, but you will know where you stand when you receive the biopsy results, so good luck with those.

    We do have a dedicated group for stoma wearers so if you and Sid want to join here's the link:

    Ileostomy, colostomy and stoma support 

    Keep posting - I need to know how you get on now Smiley.

    Best wishes - Brian.

  • Hi  and thanks for taking the time to create your blog.

    You are very soon out from surgery, so I hope you’re taking things easy! I had a different type of surgery more than four years ago (lost my bladder and rectum) so I have a permanent colostomy and urostomy-twice the fun! We had a good thread running in the Stoma Group a while ago about naming our stomas-mine are Boris and Donald as these characters were constantly in the news at the time-covid was just kicking off.

    In addition to your blog here, you could also post this in the Stoma Group where more people will be likely to read and reply-we have a range of stoma types and experiences of different cancers, and it’s a great group for advice and tips. 

    Come and join us there, and you’ll soon get to know us, but you sound like you’ve got a good attitude going forward which is a large part of everything. 

    Sarah xx

  • Thank you Milibob have joined the link you sent. Will be sure to keep you posted 

  • Wow thank you for your response Sarah- such kindness. I will be sure to post Sid’s story on the stoma site thank you. It is so lovely to hear from people in the same boat as me and receive their suHeartport Heart️ Wow your story is amazing but I love your positivity and names (funny how they all seem to be men names Wink) Thanks again and best wishes 

  • We had some ladies names in the thread-my friend Ann called hers Whoopi, and I remember we had another ileostomy called Brooke Joy it just added a bit of humour to everything and we had fun with it. You need a sense of humour sometimes living with stomas! 

    I’ll be glad to see you post again and please ask any questions you like in the group-we are not shy about poop at all (or pee too in my case) so those of us living with stomas for some time have probably seen it all! 

    Sarah xx