How much more can one person endure?

1 minute read time.

Where to begin! My dad bless him had bowel cancer 6-7 years ago and beat it with 6 months chemo and operation.  Now diagnosed with lung cancer primary. I suspected in April this year his cancer was back but shocked to find it was a primary in the lung and tracked to his spine. Then to have a PET scan a few weeks after diagnosis and find that it had then spread within 2 weeks to his hip and sternum.  He started an aggressive regime of chemo, during which he ended up in hospital for 5 days, then back in the following week for 12 days and discharged today.  All resulting from the first session of chemo.  To be told today that the results from his MRI were bad and it has spread to his pelvis, and chemo is now stopped as he is so ill another dose would kill him.  That he caught C Diff while in hospital and is life threatening for him.  After I specifically told the ward that  he is a cancer /chemo patient and still they left him on the main ward where they had D&V!!!  He then blacked out last night in hospital and fell out of bed and smashed his head on the floor.....  The doctor today could not tell me how much further it had spread as the MRI had only scanned his hip area!!  We are now not sure if he will be here for xmas and are planning his wish list and a possible early xmas.... While dealing with this I also have to deal with my great aunt who has severe dementia and incontinence.  My dad was her carer but obviously is no longer able to look after her.

My cousin died 2 weeks ago from pancreatic cancer and then to find out tonight, another cousin is now also on the cancer ward.......  When will this nightmare stop?

Anonymous
  • FormerMember
    FormerMember

    Hi Shell, wishing you the best with regards to your Dads blood test.. your mind works the same as mine, I am a sister on an intensive care unit.. knowledge can indeed be a very bad thing. All i can see at the moment are the worst case scenarios and unfortunately my worst thoughts have been realised up to this point... We are back to see the consultant on Monday as they want to start him on chemo straight away, unfortunately they failed to mention side effects, quality of life issues and never gave him an option to decline treatment. I will of course support him with what ever decision he makes... i just want his choice to be an informed one.

    What I am hoping for is that you as well as I can continue creating positive and happy memories for our beloved dads with whatever time they may have with us and that the laughter can overtake the tears.... Best wishes for a magical memorable christmas whenever that will be. My thoughts are with you xxxx

    Gail xx

  • FormerMember
    FormerMember

    Hi Gail you are so right about what you say re worst case scenarios, it is true.  Well they kept dad in for 12 hours and gave him drips then sent him home, but no other information.  A consultant apparantly told him the chemo was working and his tumour had reduced!!  regardless of whether it has or not, it has spread to far now to do any good as its in his bones.  I was so angry. He has never been seen by this doctor she is not an onclogist nor did she realise I feel that his cancer has spread to his bones and that due to the chemo his bone marrow is not regenerating as it should be.  All Saturday evening he kept saying that he was being cured, he feels that his chemo was successful and was going to ask the oncologist to restart the chemo... How do I tell him that if he has another dose it will kill him!!  So I spoke with his oncologist's secretary, and he was seen today.  The doctor has told him that the chemo nearly killed him and he can not have it restarted. But tomorrow he goes for mapping at another hospital to start some radiotherapy as the pain has increased so much for him.  I did not go with him today as I wanted the Doctor to feel that he could talk to Dad on a one to one....

    But I will be going with him as he wont be able to drive the distance there and back.

    I totally agree with the happy memories and make the most of the time that we have left no matter how long it is.  I hope things go well for your Dad you are all in my thoughts love and hugs to you all.  Keep in touch and let me knowhow things go for him.

    Michele xxx

  • FormerMember
    FormerMember

    Hi Michelle, docs have a nasty habit of lying by omission... telling you all the positive things that are happening but leaving out all the bad stuff that's been created trying to make that one thing look better. I know that these conversations are difficult but i often find myself interjecting on conversations between patients and doctors in order to provide a global picture for the patient... the least we can do is be honest in order for people to make informed choices about their treatment. Its so frustrating and i understand why you are angry...

    I needed my dads treatment choice to be his alone.. but i needed to be at his appointment for all the reasons you have talked about. I wanted to stay in the background and let dad talk through what he wanted to do. This worked to some degree but i felt the docs were painting a rather rosy picture of chemotherapy so i asked them to paint a best and worst picture of how things could go... still a little bit wishy washy so i slipped into the conversation where i worked and at last a little honesty. They have given him a couple of months at most without the chemotherapy and an optimistic two years with it..... dad has decided to go for it as i guess he feels he has nothing to lose but we discussed that if the treatment hit him hard and he felt his quality of life was being seriously impaired he would stop. Its heartbreaking to watch him go through this, he is internalising all of his emotions and he doesn't want us "weeping and wailing" because we will have enough time to do that after. I wish i didn't know what i know because if the chemo goes badly for him he will be destroyed... he has never spent a day in hospital in  his life and avoids the doctors at all costs. Its going to be such a hard journey for him and i guess im looking at those worst case scenarios again...

    I know its ridiculously silly but iv'e never seen my dad without a moustasche and i cant picture him without one....this treatment is going to take away the dad i know and im scared about that...

    I hope your dads pain is relieved by his treatment and i hope you can find a happy resolve in the problems you have experienced so far... it makes what is already a difficult journey so much harder so unecessarily....

    Thinking of you both xxx

    Much love  Gail xx