The waiting seems the worst

1 minute read time.
Having finally got around to following a proper diet,I've managed to lose two stone so far (two more to go), my clothes fit and energy levels up. However one of my boobs has got smaller as you would expect, but one has got bigger and seems heavy (like a solid implant). So off I trot to the docs. As I live within a mile of the Royal Marsden the doc sent me there for a mammogram - because they have the breats care resources, not for any other reason I'm assured. So after a mammogram and ultrasound they took a biopsy and told me to come back next week for the results. Lots of people have different sized breasts and they'd never seen any problems I'm told. Mr T (hubby) was around the following week so came with me for results, oh doc says,you've got angiosarcoma. Whats that we asked. "Angio" is to do with the blood vessels was the reply. We're referring you to a specialist. Mr T and I squabbled all the way home as to whether "sarcoma" meant cancer. Sadly I was correct. So within 2 minutes of being home I'm on the internet checking "angiosarcoma" and the results did not look good. A rare soft tissue sarcoma - very aggressive, spreads and no real data on treatments or prognosis. I then wait a few days to hear from the hospital for a date to see the specialist, but when the hospital said they were thinking of sending a letter I got the name of the specialist, phoned his secretary and made an appointment privately (I knew I went to work for a reason ....... ) The specialist then said the results were "inconclusive", took ten biopsies (that was sore) and told me to come back in a fortnight for the results - so now I'm waiting. I have all the symptoms (such as have been recorded) for angiosarcoma in the breast tissue, except that (1) there are no "obvious" signs of cancer and (2) most recorded incidents in the breast are in women 5 to 8 years after radiotherapy (which I've never had). So now I wait and wait and wait . . .
Anonymous
  • FormerMember
    FormerMember

    Thank you for sharing your story so far with us.  It really seems as though the docs don't know much about it, do they?  I really hope that they turn out to be wrong - especially as you are not in the high-risk group.  I shall be thinking about you, and keeping my fingers crossed.  Hugs xxx Penny  

  • FormerMember
    FormerMember

    Hi Sharry Hazel (Steffy1) and I will be keeping our fingers crossed for you. Hope it doesnt go on too long.