hello my name is Sharon and i am very green when it comes 2 computers. i have a blood disorder and would like 2 talk 2 anyone who may have the same maybe has info where Dr's do not seem 2 have time to talk 2 u. this rare blood disorder is called essential thrombothycemia. also thank you for letting join this web site. not having anyone really 2 talk 2 has been hard.
FormerMember
my son who is 21 years old has thrombothycemia. never heard of it called essential. his platlets are normally around 80 which is very good for him. my son was born with blood disorder
hello my name is Sharon and i hope your son is doing well. when i was told i had essential thrombocythemia my platelets were over one million. as far as any info on this blood disorder i have had to find on line. when i ask my Dr's was there anything i could do to help myself they said no.so any info i can find from anyone sure would be great. thank you for answering.
