Sam has a pain under his ribcage. He finds it hard to cough as the muscle goes into spasm and feels like it's drawing his back to his front. I called the GP on Friday as he wanted to see someone. She was with us within half an hour. Thankfully she was able to tell us that Sam does not have a chest infection, his lung sounds are clear and she can feel nothing that would make her worry. She also was pleased to see that, since her last visit several weeks ago, his fluid retention is no worse, it's not much better, but certainly no worse. So, to help open up Sam's airways and make it easier to cough, she prescribed ventolin, she suggested he increase his oxycontin to 135mg twice a day and take oxy norm while the increased oxycontin got into his system. Sam didn't want to go up to 135mg so we agreed on 110mg. By Monday he was no better, in fact a bit worse, and Sam said he wanted to go up to 135mg, which is so out of character for him, Sam has always wanted to reduce his medication if possible. I spoke to the GP again, as she had asked me to update her, and she wanted me to take Sam to hospital for a chest x-ray. I told her he has an appointment on Wednesday(tomorrow) with his consultant so she was happy that we wait and see him as it will save Sam alot of waiting around. Sam has been taking oxy norm much more than previously and today it seems to have caught up with him. He has slept for most of the day, only waking biefly and then he is very confused and has lost his co-ordination. I mixed up some co-codamol for him and, due to spasms in his arm, he promptly threw it over both of us. His kidney function doesn't seem to be too good as he is not passing very much and it is very dark. I am very worried about him and it is hard to deal with him talking in a way that I can't understand. I'm just hoping that the oxy norm will soon be out of his system and he will be back to being my Sam. It's so frustrating for both of us that I don't know what he is talking about. He keeps pushing all the buttons on his electric chair and ending up nearly stood up and half asleep. He gets so annoyed when I try to persuade him to put the chair down.
Sam has made it known to everyone that he wants to stay at home, I'm now doubting that I am capable of looking after him. It is becoming harder and harder. I watch peope on t.v and the people I see in the street who walk about without seemingly having a care in the world. It seems so unfair that Sam has been robbed of being able to do evertday things like walking to the shops or driving the car and I want to make him as comfortable as possible. I hope I am able to. Going to get comfy on the sofa again and try to get some sleep. We didn't go up to bed last night as Sam is more comfortable in his chair and it takes too much out of him getting upstairs.
