update from sammieo

well after last weeks shocker i went for an appointment at my local hospital to discuss radiotherapy. i don't think i told you all too much about my last marsden appointment . whilst i was on holiday i was called by the hospital to say that surgury was 1st option and go ahead to meet with the surgeon's the following tuesday , the appointment did'nt go too well to say the least. i would honestly say my dog would have got treated better at the vets..seriously! the surgeon waltzed in after waiting 2 hours to see him and he then said he couldn't find my mri , pet or ct scan's ! he then said oh yes you had your mri yesterday didn't you , i said no 4 weeks ago ! even though i was in a great deal of pain he did an internal and rectal exam whilst my partner ( although behind a screen) was in the room , he gave him no option of leaving the room. he then said i would need a biopsy until i replied i had already had one. i then asked if my tumour had got any bigger and in his words he said ' how am i supposed to know its the 1st time i've seen you '. i laugh now at the rudeness of it all but last week i was in pieces . he left the room after telling me about the surgury involving taking out my bladder, i was left with his nurse sidekick and i asked her why his opinion was so different from anything else i'd been told and how he could form that opinion when he hadn't seen my scans. she told me that he was the best in his field and i should respect his opinion.. ok the day after i rang the oncologist at my local hospital to ask why after a 2 week wait the marsden hadn't received my scans , i spoke to her secetary who expressed her disgust as she personally made sure the marsden had my scan's. the oncologist rang later to say she had got letters back from the marsden and would see me today. anyway the oncologist was disgusted with way i was treated by the marsdens surgeons and said that i aswell as herself should write a letter of complaint , she said that no one should of been treated as i was on that day and that she will think twice about referring anyone to that surgeon. she also said that the maidstone hospital surgeon was furious with what the marsdon surgeon suggested and that he was sure he could operate ,post radio, without removing the bladder , he said that even if he thought it was too tricky that surgeons at st thomas's would be able to do it without removing the bladder. so.... i am having 5 weeks of radiotherapy with 1 day a week chemo . the a scan to see if the tumour has shrunk and discuss surgury. all in all a rough week but i finally feel i'm getting somewhere , as for the marsden being the best of the best well my letter of complaint will go out tomorrow.