Start date for chemotherapy

1 minute read time.

Hi,

I saw the Oncologist today, even though it's Bank Holiday Monday, and will start my chemo two weeks today. I don't know if I'm glad or not. I am glad that I have some definite date to work towards, as I feel more confident with my 'Plan'. I've been feeling in limbo up to know since I saw the surgeon who confirmed the tumour was malignant, which was about two weeks ago now. As I wasn't sure where the chemo would be, I haven't had anyone to speak to to get help and advice, except this group, so have been feeling a bit lost. I have to be very organised and efficient at work, and this does tend to run through into my home life, so I like to know what's happening and when. I've felt so lost, as I had no idea when things were going to start, so haven't been able to plan my return to work. I'm not ready to drive yet, I have to wait a couple more weeks, so won't be working before I start my chemo. Ho Hum. 

We're off to Cornwall on holiday in June, and they have managed to organise the chemo, so my good weeks will be when I'm away, so we're thrilled. We booked this last October/November, and I would never in a million years have guessed I'd be juggling chemo sessions with it. Life has a way of keeping you guessing doesn't it.

Anyway, I've got to have a CT scan and a kidney function test before I start the chemo, and I'm off into Manchester at the end of next week to get a wig. Whether or not I'll actually wear it, we'll see, but I think I'd feel more confident in the early days with one than without. Sorry, seem to be rambling on a bit at the moment, so I'll clear off now, as my Husband has just made me a cup of tea, which he's started calling my teamotherapy!! If only it was that easy......

Love and Best Wishes to everyone,

Sally XX

Anonymous
  • FormerMember
    FormerMember

    Hi Sally

    I am waiting to hear when my treatment will begin and as you say it is like being in limbo.  You must feel a bit better now you have a start date.  I have an appointment for an internal examination tomorrow under general anesthetic which I am abit worried about.

    I have also been asked whether I would like to be referred for a wig fitting so I am,  I told my husband I would get a long blonde one (i have short brown hair at the moment) I also have have two marks tatooed on my abdomen to mark the spot for zapping.  I have always hated tatoos but told my husband I may have them made into flowers.  He thinks I;ve flipped, maybe I have, as you say a couple of months ago I would not have believed I would be in this situation.  Anyway best wishes to you I better have an early night as I have to be up at 6am

    Liz

  • FormerMember
    FormerMember

    hi hun

    im so sorry you have found yourself on this journey but rest assured you have come to the right place it is one of the best things i ever did have met so many lovely people who have supported me on my journey and helped me along the way from answering so many questions which i needed to know regarding chemo hair loss side effects everything really without them id be in no mans land believe me so dont be afraid to ask anything you need to know there is always someone to reply and help you through and now you have your plan set in place you know what is in front of you stay positive always take care love and hugs jen xxxx

  • FormerMember
    FormerMember

    Hi Liz and Jen,

    Thanks for your messages of support, and Liz, when you read this, your internal exam will be behind you, and hopefully you too will have some answers..

    Take care, and love to you both, Sally xx

  • FormerMember
    FormerMember

    Waiting is definitely the worst bit- once things start at least you know you're blitzing the baddies! I only wore my wig for special occasions as family and friends seemed unfazed by my dodgy bandannas! The wig was provided by our local oncology clinic and was quite glam- picked something different to my own for a bit of fun!

    Hope things go well for you. Take care,

    Polly x

  • FormerMember
    FormerMember

    Hi Polly,

    Thanks for that. I'm off on saturday to get my wig. I'm not sure how I'll be. I can think quite logically one minute, then start crying for no reason the next. I guess it'll get better in time.

    Take care,

    Sally. XX