Update on my Caelyx journey

Hi Rosie,

Just take things day by day.They will get round to making their Minds up sometime. All the best and Good Luck.

Take care and be safe Big Hugs Love Sarsfield.xxx

Hi Rosie,

              I'm sorry the results with Caelyx were not as good as you had hoped. Caelyx did not work for me and it was stopped after three cycles. I also had a nasty rash and my hands and feet developed itchy blisters. My onc said that he would be happy for me to be off chemo for a while as I was feeling generally well but said the choice was mine and I could opt to try Tamoxifen or carbo/taxol again but this time every week instead of once every three weeks. I chose the carbo/taxol and have just finished the first of six cycles.

For me , it didn't feel right to go without treatment at this time but you know how you feel and I am sure you will have regular checkups and discuss your options .

As you say, we will  carry on regardless and I wish you all the very best with whatever is decided.

                 Take care and feel well,

                            Love lizzie xx

Hi Rosie..I have just start on Caelyx myself for the first time on Tuesday. Hands and feet have heated up and lost some skin on left palm but am using E45, so any handy tips would be good. Take care...love carol x

Hi Carol, my hands and feet were not too bad just went dry but l had rashes all over the Ea5 is the best thing ans use loads. My Onc prescribed it for me you get a big bottle then.Have they given you some gel packs that you put in the fridge. I didnt use them but you might find them useful.

The worst thing for me was the constipation that was the worst l have ever been. I was not drinking enough for one thing.

I hope all goes well for you. I always read your blogs. I am so sorry that things at home are not good for you at the moment.

Love Rosie

Hi Lizzie, yes we must carry on regardless. My onc has not mentioned going back onto carbo and taxol proabley because l have had three rounds of that previously and it had stopped working. My cancer is slow growing so l am content to wait for a bit. How did your carbo taxol go this time with it being every week?

I hope all goes well for you Lizzie