Letti asks - Any advice?

Less than one minute read time.

Hi, I was diagnosed with head and neck cancer Nov 2021. After surgery to remove 2 tumours from back of mouth and under tongue I was recovering well until starting radiotherapy. 8 sessions into prescribed 30, the side effects started. A week later I became unable to swallow liquids and was hospitalised for 2 weeks during which a NG tube was fitted. That was the beginning of March 2023 and I still need a feeding tube. Despite following all the exercises, I am unable to eat anything other than small amounts soft food covered in sauce. I have been told the radiotherapy side effects could last 6 - 9 months or more. As I see no improvement its become quite depressing. However, it is what it is and moving forward it has been recommended that I move to having a RIG fitted for feeding. My consultant says the only downside to this is it may impact on intimacy. Without sharing details (!), does anyone else have good/bad experiences of RIG feeding? Apart from Consultant’s comment, does this show through clothing? Any hints and tips most welcome.

Anonymous
  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read about the difficulties you're experiencing since you've been treated for a head and neck cancer.

    The online community is divided up into different support groups so I'm going to recommend that you join the head and neck cancer group as you'll then connect directly with others who have experience with a RIG.

    If you'd like to join the group just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.