Waiting....

1 minute read time.
I was (and still am for all intense and perpose) a fit and healthy 24 year old. I have just (16/12/14) been diagnosed with B-Cell Non-Hodkins Lymphoma. I went to see my GP at the end of November for a swollen tonsil that I'd had for a couple of weeks, it wasn't really that painful just annoying. She prescribed a week of penicillin that didn't do anything so I got refered to an ENT. Long story short within a month of the growth appearing I had a tonsillectomy to have the affected left tonsil removed. As far as I was concerned that was problem sorted, and was just waiting to hear back from my consultant about what it was. A week after the opp I found was told it was NHL. This came as a massive shock as I have had no other symptoms and feel perfectly fit and healthy!!!!!! I am am now waiting to hear from the oncologist to arrange an appointment to talk through my diagnosis and treatment. As you can imagine I am in complete shock and don't think it has actually sunk in yet. I am currently on holiday with my family and so have to wait until I'm back to meet my Dr, but have emailed him in the hope of getting some more information regarding the type of treatment as I am totally in the dark about everything! I have so many questions and was wondering if anyone else had been through the same???
Anonymous
  • FormerMember
    FormerMember

    Hi RAJH

    Firstly, do be concerned about my name “worried Will”, I’m on the site because of my sister.

    To be brief, when I had my prostate removed in mid-2004 because of prostate cancer (pc), they remove the lymph nodes in the groin for a biopsy to check for any spread of pc cells

    I was fit and well and the only way I found out I had Low grade (indolent), B-Cell, Non-Hodkins Lymphoma was because of the biopsy. You do not have any symptoms until your system reacts to lymphoma.

    I thought the worse but it wasn’t a problem.

    They took a bone marrow sample and concluded it was all in the lymph system. No treatment was needed, just regular 6 monthly blood tests. These check how well your blood system can cope with the increased lymph cells that are generated.

    Mine has been going for over 10 years, the lymph cell count up and down and some lumps but no real problem. I get more tired, but that could well be because I’m nearly 70!

    I’ve been fit and well (even with prostate cancer I didn’t know I had it and am completely clear of it having had my prostate removed).

    So, chin up. If it’s like mine it will all become a “non-event”.

  • FormerMember
    FormerMember

    Oops - sorry should have said "Do NOT be concerned about my name"